Living with fibromyalgia or chronic fatigue syndrome (CFS/ME) can feel like navigating a maze—one filled with confusing symptoms, inconsistent medical support, and a constant need to explain your experience. That’s why we’ve gathered this collection of blog posts and resources from people who truly understand what it’s like.
Whether you’re newly diagnosed, supporting a loved one, or seeking better ways to communicate with your doctor, these articles offer insights, encouragement, and practical advice.
Understanding Fibromyalgia and Chronic Fatigue
What Is Chronic Fatigue Syndrome? – Dan Neuffer
Dan breaks down the science and symptoms behind CFS/ME, offering clarity on a condition that’s often misunderstood. His approach is grounded in research and personal experience.
Fibromyalgia Hyper-Sensitivity – Sue Ingebretson at Rebuilding Wellness
Sue explores the heightened sensitivity that many fibro warriors experience—from noise and light to emotions and pain. She offers tips for managing sensory overload and reclaiming calm.
Fibromyalgia Symptoms – Fibro Blogger Directory
A comprehensive overview of common fibromyalgia symptoms, including pain, fatigue, brain fog, and digestive issues. This post is a great starting point for anyone trying to understand the condition.
Physical Activity and Sleep in Chronic Fatigue Syndrome and Fibromyalgia Syndrome – Fibro Files
This research-based article explores how physical activity and sleep duration affect symptom severity in people with CFS and fibromyalgia. It highlights the need for personalized treatment approaches and challenges assumptions about rest and movement.
Learning About Chronic Pain – Janet Jay
Janet shares what a med student learned from hundreds of chronic pain patients on Reddit. The post reveals raw truths about stigma, misdiagnosis, and the emotional toll of being disbelieved—and why medical education must change.
Patient Experiences & Coping Strategies
The Fibro Challenges of a Day in London – Dale Rockell at Fibro & Photos
Dale shares how he planned and paced a day trip to London, balancing enjoyment with the realities of chronic pain. A relatable story for anyone trying to stay active while managing symptoms.
Being Your Own Doctor – Glenys Robyn Hicks at Australian Sacrificial Home Body
Glenys reflects on the importance of self-advocacy and trusting your instincts when navigating the medical system. A powerful reminder that you are the expert on your own body.
Gratitude Diary – Helen at Helen’s Journey
Helen shares how keeping a gratitude diary helps her shift focus from pain to positivity. This simple yet powerful practice offers emotional relief, a sense of control, and a way to celebrate small joys even during difficult days.
Finding Creative Ways for Coping with Pain – Mandy & Michele (featuring Carrie Kellenberger)
Carrie shares her journey through multiple diagnoses including fibromyalgia, ankylosing spondylitis, and MECFS. She discusses how creative outlets like art and gardening, along with online support groups, help her manage daily pain and isolation.
My Fight to Be Diagnosed With Chronic Fatigue Syndrome – Bethan Jones at Hello Fibro Blog
Bethan recounts her exhausting and emotional journey to a CFS diagnosis after years of worsening symptoms and dismissive doctors. Her story is a powerful reminder to trust your instincts, persist through setbacks, and advocate fiercely for your health.
Recommended Resources
Navigating the Medical System
Are Doctors Biased Against Patients? – Julie at Counting My Spoons
Julie discusses a Medscape survey that reveals troubling biases among healthcare providers. She offers advice on how to advocate for yourself and find compassionate care.
What Did You Say? Comments from Doctors About My Chronic Illnesses – Sarah at Me, Myself and Chronic Illness.
Sarah shares a collection of shocking, dismissive, and sometimes humorous comments she’s received from doctors while seeking care for her chronic illnesses. This eye-opening post highlights the importance of patient advocacy and the need for greater empathy and education in the medical field.
Diagnostic Challenges for Men with Fibromyalgia – Thom Byxbe
Thom explores the unique barriers men face when seeking a fibromyalgia diagnosis, including gender bias, societal expectations, and medical misconceptions. His post sheds light on why male patients are often overlooked or misdiagnosed, and calls for greater awareness and inclusivity in chronic illness care.
💜Thank You
A heartfelt thank you to all the bloggers who contributed their stories, research, and reflections. Your voices help build a more compassionate and informed community for everyone affected by fibromyalgia and chronic fatigue.
About the Fibro Link-Up
This post is part of the Fibro Link-Up, a monthly event (formerly known as Fibro Friday) that welcomes blog posts about fibromyalgia and related conditions. If you’re a blogger with a story, tip, or resource to share, we’d love to include you in future editions.
💜 Thank You for Visiting
To all our readers—thank you for taking the time to learn more about fibromyalgia and chronic fatigue. You make a real difference. Please share this post to help raise awareness and support others on their journey.
Every click, comment, and share helps someone feel seen.
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