Whether you have fibromyalgia, a loved one who has it, or you're simply looking for more information about this chronic pain condition, building a supportive social media network is crucial.
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Why Twitter/X Matters for the Fibro Community
When living with an invisible and often misunderstood chronic illness like fibromyalgia, Twitter/X can be a lifeline. It offers a dynamic space that your immediate circle sometimes can't:
Validation and Empathy: See your daily struggles—from fibro fog to chronic fatigue—reflected in real-time posts from people who truly get it.
Real-Time Tips and Hacks: Get immediate, practical advice on coping with flares, dealing with doctor's appointments, or navigating disability issues.
Break the Isolation: Chronic illness can be incredibly isolating. Following active fibro accounts helps you feel connected to a global community that is supportive and non-judgmental.
Stay Informed: Keep up with the latest research, treatment options, and advocacy efforts from the community leaders.
Of course, all the suggested accounts are our wonderful fibro bloggers who are part of the Fibro Blogger Directory. They live with fibromyalgia and they blog about it.
Who To Follow on Twitter if you have Fibromyalgia. #WhoToFollow
Carrie Kellenberger - MySeveralWorlds.com @globetrotteri ♿️ I write so you can better understand #axSpA #Spondylitis #Fibromyalgia #ChronicPain #MECFS #Arthritis 🌏 Former world traveler ➡️ Veteran patient advocate https://twitter.com/globetrotteri/SarahW @sswarbo A slow-paced life, but finding joy every day. Always tired, almost always in pain. Loves writing & nature. #fibrowarrior #spoonies #chronicillness https://twitter.com/sswarbo
👣Helen's Journey👣 (Blogger & Poet📝) @helens_journey GreenLiving💚 Encouragement💆🏼♀ & Poetry BLOG. "Follow my spoonie footsteps exploring more NATURAL ways to Life/Health & Wellbeing. " FIBROMYALGIA Fighter 💜✝ https://twitter.com/helens_journey
Sue Ingebretson @SueInge Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack https://twitter.com/sueinge
Beyond Fibromyalgia @BeyondFibro Nurture, Balance, Integrate ❤ Body, Heart, Mind and Spirit https://twitter.com/BeyondFibro
Katarina @annakatarinaz Blogger, health writer, aspiring mystery novelist | wife, cat slave| history nerd, mystery reader, nature photographer| https://twitter.com/annakatarinaz/
Me, Myself and Chronic Illness Blog @me_illness #chronicillness #introvert - Chronic illness blogger and writer who talks about personal experience of Fibro, M.E, UCTD, Tourette's, PCOS and mental health. https://twitter.com/me_illness
BettinaBier @BettinaBier Living with #Fibro | Enjoy the little things in life | Love to be creative | Love my dog 🐾❤ | Germany, Cologne https://twitter.com/BettinaBier
Cynthia Baughman @photobaugh Strategy | Leadership | Technology | #Cybersecurity | #Fibromyalgia | Finding Inspiration in Everyday Life | CA girl living in TX https://twitter.com/photobaugh/
Alisha Nurse @AliApow Curry-loving writer & NHS comms professional. I blog about life with fibromyalgia and depression at http://theinvisiblef.com https://twitter.com/AliApow
Melissa vs CFS/FMS @thefibromama Fiction author and chronic illness advocate. On a mission to be as well as possible with fibromyalgia & chronic fatigue syndrome. I do yoga in bed & chairs -get your free GENTLE #yogaforfibromyalgia series https://twitter.com/thefibromama
Dan Neuffer @cfsunravelled ME/CFS/Fibro Recoverer, Author and speaker helping people with #MECFS,#Fibro, #POTS #ChronicFatigue #CFIDS,#MCS,#Fibromyaligia see that RECOVERY IS POSSIBLE! https://twitter.com/cfsunravelled
BloggerBarbara @BloggerBar Chronic back pain sufferer and keen freelance blogger. I love to write about #ChronicPain #BackPain,#Fibromyalgia, #Health, #AlternativeTherapies #cakes https://twitter.com/BloggerBar
Brandi Privitera @beingfibromom Brandi is a Navy veteran and work-from-home mom passionate about helping parents living with fibromyalgia better care for themselves and their families. https://twitter.com/beingfibromom
The life of a 20 something living with fibromyalgia. England, United Kingdomhttps://twitter.com/fibrohello
Not everyone in Fibro Blogger Directory is on twitter so you may like to see the full Directory of bloggers here. Also many of our fibro bloggers are on facebook and you can find that facebook list here.
Thank you for including me in your list of Twitter accounts to follow - it's great to be part of the Fibro Bloggers Directory community! 💜
ReplyDeleteHi Helen, so good to hear from you. We love having you in the Directory and thanks for dropping in and taking time to comment.
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