Have you written a poem about how this disease makes you feel? Here is just a part of Valda's:
The loneliness of this disease
just claws within my soul
and makes my pain so much to bear --
a mean and nasty foe.
But the wisdom of those simple words
console me through tough times
and soar within my soul like birds
with love and joy divine!
Visit her site to read the whole beautiful poem.
And part of the poem that inspired this post:
Isn’t it strange, how nature makes your forget,
That terrible pain you have and continually get.
It comes in waves when you least expect it,
And you think, please stop now and give me a rest for a bit.
Read the rest at Back Pain Blog
Don't Tell Me that you understand, a poem by Joanetta Hendel
Pain–Has an Element of Blank–
It cannot recollect
Read the rest of Emily Dickinson's poem at Fighting Fibromyalgia
POEM: MIRRORED EXPRESSION
My face has changed; my expression bare.
This is my pain, that so many share.
The smiles and joy that I once knew so well.
Have vanished before me; a living hell.
I see those who are active and those who can dance.
I want those happy moments. I need hopeful plans.
But when I look in the mirror, all I can see
Is fatigue in my eyes, and a frown before me.
Oh I try to push through. I can act for a bit.
But my body still hurts, and my mind is still wrecked.
And now and again I feel a bit better
But I’m tricked in believing my pain has been severed.
The next day I wake, in the middle of the night.
The pain is back in full, it’s a horrible fright.
So I lay there hoping my mind will shut down.
And pray it’s a dream. When I wake I’ll be found.
It’s just not fair that so many live
While I suffer in silence with nothing to give.
And despair comes a calling; it thinks it’s a friend.
But I hate it and so want her visits to end.
I know people all struggle, they mirror my pain.
They mirror my expression, and that keeps me sane.
Not that others can suffer and deeply as I
but, that others can understand my longings and sighs.
So I look in the mirror, and I put on a smile
I’m going to fight this for more than awhile.
I’m going to see in the mirror, my beauty that shines.
I must let it out, my hopes must not hide.
It’s a daily battle of wills for my life
So it’s round one today, I’m up for the fight.
I will kick and scream into the night.
I will keep my eyes fixed on the light.
May others who see my reflection this year
See my expression but, not see my fear.
My I find those who suffer, may we all stand as one.
And may this damn illness not burn out my fun.
All I ask is a moment, when life feels the same.
As I longingly recall, when I knew not this pain.
My Faith will protect me, my friends will be there.
And we will share with each other, how we all care.
I will look in this mirror, and change things around.
Amidst all this pain, no despair shall be found.
Each day I’ll renew, this promise to me
And that in itself will keep my hope free.
Douglas W. Koehler ©2014 All Rights Reserved.
Have you written a pain poem? Why not add the link here in comments so it can be included here. It's a great idea for a heartfelt unique post.
LINKED UP AT FIBRO FRIDAY NO. 1 and 146 with the new poems