Showing posts with label Fibro Info. Show all posts
Showing posts with label Fibro Info. Show all posts

Monday

Latest fibromyalgia blogger articles

You can gain deeper insight into fibromyalgia with these informative articles. People living with fibro share their personal experiences, shedding light on the ways this chronic pain condition impacts their lives and those around them. This week we have four articles on food and many other helpful subjects including recent fibromyalgia research, how to handle the holidays, and using a symptom tracker and foods.
Latest fibromyalgiaarticles

This includes both global and UK awareness days at Back Pain Blog UK. Have you heard of Blue Monday or Paget's disease?

Melissa vs Fibromyalgia explains how to plan your day using pacing.

Dale talks about his exeriences with yoga including the benefits he sees and how to begin. 

Baking Cookies with Fibromyalgia... Or Not is about the difficulties and decisions of baking cookies and keeping up family traditions.

How Chronic Pain Warriors Handle The Holidays is a friendly letter style post about one persons thoughts around how they view and also manage the holidays, her wishes and memories and how she sees herself. 

Did you know that ''sending a blessing benefits both the bless-or and the bless-ee. It has a transformational effect on both you and the recipient.''

Is where Susan talks about the difficult year she had in 2023... a death in the family, perimenopause symptoms, deression and grieving.

''Black, white, green, oolong, rooibos, flavoured, herbal. Loose leaf or bagged. Milk and sugar or straight up. Tea comes in many varieties and the steps to crafting the perfect cuppa have been hotly debated for years. Black tea is the UK’s most popular type and confers the most benefits, but however you take it, you’ll be glad to know there will be at least a few extra perks besides the comforting taste. Here are x surprising health benefits of drinking tea. Put the kettle on, grab a cuppa and enjoy!''

In this article we find out about the lions message for humanity.

''Despite its prevalence, fibromyalgia remains a complex and poorly understood condition with no known cure. However, significant research efforts are underway to unravel the mysteries of this chronic pain syndrome. Here’s a snapshot of the current state of fibromyalgia research.''

According to this article living with fibromyalgia can be made easier by following an anti-inflammatory eating plan. It lists the inflammatory foods to avoid so you can help reduce pain levels and improve nutrition.
Read full article

Omega 3 is crucial for managing fibromyalgia. Read this article to find out its hidden benefits, foods that contain it and why flaxseeds in your diet can make a significant difference to your pain. 

A christian women's persective on ways to overcome the depression caused by living with fibromyalgia and other chronic illnesses. 

From Fibro Friday week 483
  1. 10 Health Awareness Days for January 2024
  2. How To Use Your Symptom Tracking to Plan Your Day (Pacing Well)
  3. Fibro And The ‘Y’ Word!
  4. Baking Cookies with Fibromyalgia... Or Not
  5. How Chronic Pain Warriors Handle The Holidays
  6. Biology of Blessing
  7. When Everything Collides
  8. 10 Surprising Health Benefits Of Tea Drinking
  9. The Unyielding Majesty of the Lion’s Roar
  10. Fibromyalgia and the Current State of Research
  11. 10 Foods That Cause Fibromyalgia Symptom Flare-ups
  12. Why Omega 3 is so important when living with fibromyalgia?
  13. Sufficient to the day
Latest fibro blogger articles



Wednesday

Latest Fibromyalgia Articles

These articles allow you to gain more understanding about fibromyalgia. Those living with fibro are sharing their blog posts to raise awareness of this chronic pain condition and the many ways it affects their lives and those around them.

The Latest Fibromyalgia Articles


‘Chronic Illness Joke of the Week’ Series
A Joke about Heat Therapy, especially using heating pads to help with chronic pain. Helen at Helens Journey. Read more

Is Fibromyalgia Serious? 
Melissa at Melissa vs fibromyalgia talks about insomnia, the heart, diagnosis and her story with fibro. Read more

The Art of Happiness.
 About finding your own happiness. By Thom at Thom Byxbes Desk. Read more

Warming gifts for Christmas. 
Shares gift ideas that can provide warmth and ease pain. By Blogger Bar at Back Pain Blog. 

You Never know What You’ll Get With Fibro Or Photography
Dale Rockell describes one of his early morning walks as a photograher with fibromyalgia.
Alternative Healing
5 Astonishing Methods to Overcome Boredom and Embrace Life including some you may not have heard of. By Thom at Thom Byxbes Desk. Read more

Foods That Fight Fibromyalgia Review
A review of Foods That Fight Fibromyalgia – Nutrient Packed Meals That Increase Energy, Ease Pain, and Move You Toward Recovery by Deirdre Rawlings, PH.D., N.D. By Sue Daze at Fibro Daze. Read more

Fibromyalgia stories
My diagnosis, by nine people living with fibromyalgia.
Read more

Cyclobenzaprine for fibromyalgia.
Describes a treatment for muscles stiffness. By Lee Good at Fibro Files.
Read more

11 Things You Should Never Say to Someone With Fibromyalgia.

A list of things that you’ve likely said at some point to someone you care about, and in doing so you unknowingly made them feel even worse. Don’t do it again.

These are things you should never say to someone with Fibromyalgia (or any chronic illness). By Julie Ryan at Counting My Spoons. Read more


Fibromyalgia Holiday Stress.
Symptoms of stress and seven tips to overcome it. By Sue Ingebretson at Rebuilding Wellness.
Read more of Fibro Friday week 482
:

  1. ‘Chronic Illness Joke of the Week’ Series
  2. Is Fibromyalgia Serious?
  3. The Art of Happiness.
  4. Warming gifts for Christmas.
  5. You Never Know What You’ll Get With Fibro Or Photography.
  6. Alternative Healing
  7. Foods That Fight Fibromyalgia Review
  8. Fibromyalgia stories
  9. Cyclobenzaprine for fibromyalgia.
  10. 11 Things You Should Never Say to Someone With Fibromyalgia.
  11. Fibromyalgia Holiday Stress.

The Latest Fibromyalgia Articles


Information about Fibromyalgia, Chronic Fatigue and Doctors

Here we have some interesting articles for you about fibromyalgia and chronic fatigue, two chronic illnesses both with symptoms of pain and fatigue. 

What makes these articles different is that they have been written by people living with the conditions. We also have some helpful articles about doctors specific to when you are living with chronic illness. Just click on the links below to be taken to the full articles.

Fibro Fighters sharing their stories


πŸ’œ Dale Rockell shares his observations as a photograher, living with fibromyalgia, when visiting the big city of London for the day. 

Living with Fibro and it’s many challenging symptoms means taking many things into account to make the most of my day and navigate the hustle and bustle of the city. The Fibro Challenges Of A Day In London


πŸ’œ The results of a study into physical activity and sleep in both Chronic Fatigue Syndrome and Fibromyalgia at Fibro Files.


πŸ’œ Blogger Bar reviews her to 5 Fibromyalgia books 

This book is an indispensable resource that empowers fibromyalgia patients to take charge of a debilitating disease and get the health care they deserve.


πŸ’œ Melissa vs Fibromyalgia is a busy Mother and here she reveals her tried and tested ways of staying organised. Today I’m spilling the beans on the super simple systems that help keep me organised with chronic illness in Staying Organised with Chronic Illness – 4 Systems I Rely On


πŸ’œ Carrie Kellenberger shares her chronic pain story and explains the creative ways she copes with the pain in Finding New Creative Ways To Combat Pain.


πŸ’œ Are Doctors Biased Against Patients? And if so, does it affect the treatment they provide. Julie answers these questions through a survey done by Medscape.


πŸ’œ Glenys talks about issues she is having with her medications in Being your own doctor.


πŸ’œ Thom Byxbe states the case for what he believes is The One Relationship You Can’t Afford to Neglect


πŸ’œ In Epic Life Upgrade Thom explains what is needed to get motivated and move from stagnation to triumph.


πŸ’œ I want to share a bit of my journey with chronic fatigue. It’s a tough road, but through the ups and downs, I’ve found some strategies that really make a difference in my chronic life. Let’s dive in together.

Cynthia Covert shares her strategies in My Journey with Chronic Fatigue: Finding Energy and Joy in Daily Life


πŸ’œ Helen praises the Power of THANKFULNESS to bring more happiness & inner peace into your life and shares 4 tips for increasing it. 


πŸ’œ Sue Ingebretson discusses how sensitive many of us are when living with Fibromyalgia in her post on Fibromyalgia Hyper-Sensitivity 

I’ve often said that I’m thankful for fibromyalgia. Learning how to analyze and deal with chronic illness has taught me powerful lessons I wouldn’t have learned any other way.


πŸ’œ Glenys Hicks shares a link to the housekeeping lists that she follows when living with many chronic illnesses in This is a great help.


πŸ’œ In How To Describe Fibromyalgia Pain To Your Doctor Sue Daze shares tips to help fibromyalgia sufferers be less misunderstood by their medical professionals. 


πŸ’œ What is Chronic Fatigue Syndrome (CFS) – the answer might surprise according to Dan Neuffer.


πŸ’œ My Fight to Be Diagnosed With Chronic Fatigue Syndrome is where Bethan Jones explains her search to find what, on top of her fibromyalgia, was causing her such extra and extreme fatigue. 


1. The Fibro Challenges Of A Day In London  
2. Physical Activity and Sleep in CFS & Fibromyalgia Syndrome  
3. 5 OF THE BEST FIBROMYALGIA BOOKS  
4. 4 systems I rely on to stay organised with chronic illness
5. Creative ways to cope with pain
6. Are Doctors Biased Against Patients?  
7. Being your own doctor  
8. The One Relationship You Can’t Afford to Neglect  
9. Epic Life Upgrade: From Stagnation to Triumph  
10. My Journey with Chronic Fatigue: Finding Energy and Joy in Daily Life  
11. The power of thankfulness, yes even with chronic illness!  
12. Fibromyalgia Hyper-Sensitivity  
13. Glenys Hicks This is a great help
 

Thursday

Fibromyalgia stories: my diagnosis, by people living with fibromyalgia

I find it fascinating reading how people received their diagnosis of fibromyalgia and thought you might too so I am sharing many of them here from the fibro bloggers in our Directory. 

diagnosis stories, by people living with fibromyalgia

I have noticed a few common threads in these stories - many of us went to quite a few doctors before we received a diagnosis, many of us had to keep pushing to find out what was wrong, many of us found our symptoms were not taken seriously or took years to diagnose.

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'It took years for me to get a diagnosis … and I had to do it on my own.
Learning to become my own advocate, I finally discovered what was wrong. Of course, my symptoms were devastating. I felt like an 80-year-old trapped in the body of someone who wasn’t yet 40.' ~ Sue from Rebuilding Wellness.

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'Finally, they gave me a diagnosis of exclusion, something called Fibromyalgia, because their diagnostics are not sophisticated enough yet to source the true cause of the problem. They told me it is not terminal, but there are limited ways to treat the burning fire inside my muscles that debilitate me.' Leah from Chronicles of FIBRO

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'A visit to the Neurologist resulted in a bunch of tests but they couldn’t find any reason for the symptoms. He sent me to a couple of other specialists and they couldn’t find anything either. Eventually, through research of my own and pushing to see a Rheumatologist, I received a diagnosis of Fibromyalgia.' ~ Julie from Counting My Spoons

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'The rheumatologist was the first person who looked at me and said, “something is wrong, I can tell.” But all my labs came back fine, as always. So she diagnosed me with fibromyalgia because I did have all the tender points required to meet the diagnoses (and more). At the time, I didn’t really believe in fibro, not that I thought people were faking, more like it was a diagnosis you get when the doctor has no clue what is wrong. I fought the diagnosis for a long time.' ~ Shelley from Chronic Mom

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'In July 2009, I finally got to meet with a Rheumatologist, Dr van Zyl at Unitas Hospital. Within 10 minutes, he diagnosed me with severe Fibromyalgia! I was not crazy, and it was not all in my head! Finally, someone that believed and understood what I was going through.' ~ Angelique Gilchrist from Fibro Ramblings.

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'The second rheumatologist at 20 was the one who diagnosed me with fibromyalgia. By then I had a family history with it as well as my father had been diagnosed. At this time the tender point test was still something they did. And I had a whole lot of pain in those spots for sure.' ~ Nikki Albert from Brainless Blogger.

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'The symptoms came on gradually, starting with back pain, infections, shoulder pain, insomnia – and finally a referral to a pain clinic where I was told I had a chronic, incurable illness. I left school and spent the next year in a state of shock.' ~ Katarina from Skillfully Well and Painfully Aware.

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'Fibromyalgia was a diagnosis I received around the age of 27. Like a lot of people with this condition I was ill for a very long time before I was considered to have something more going on than just being stressed out. My initial symptoms were dismissed on a regular basis by health professionals who believed I was simply burning out from work, but I was becoming more and more unwell. So unwell in fact I became like someone in my 80s and not my 20s. It affected my ability to work, to socialise, in fact my ability to do anything.

After much back and forth with the doctor and referrals to the wrong clinics, I was eventually diagnosed with Fibro by a Rheumatologist and discharged from their care the very same day.' ~ Sarah at Me, Myself, and Chronic Illness Blog

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'From my childhood years up until early twenties I went from doctor to doctor undergoing laborious blood tests of all kinds to rule many illnesses.

“She just needs exercise and vitamins” was a common response from the clueless doctors.

After the familiar, stressful blood tests again doctors in NYC diagnosed me with having a connective tissue disease, but rheumatologists in London disagreed and named the culprit fibromyalgia. There you go, fm diagnosis in its simplest form!' ~ Alisha at The Invisible F.

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Fibromyalgia diagnosis stories



Fibro thoughts from people living with fibromyalgia.

Here you will find many thoughts about fibromyalgia and what it is like living with it. If you click on the names of the people making these comments you will be taken to more information and the context of what they have said. 

thoughts from people living with fibromyalgia.

'Diagnosis with fibromyalgia or any chronic illness can be life changing. Bewilderment, sadness, anger, fear and a torrent of other emotions can come to the surface as a newly diagnosed patient.' ~ Sarah Warburton
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'I was done feeling awful and hiding it. I was done putting productivity in front of my ability to reduce my pain and sickness. Yup, in that moment I decided feeling good was my number one priority and everything else could happen second.' ~ Leah Tyler

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'If I had a nickel for every time I’ve heard (or said) that stress impacts the symptoms of fibromyalgia, I’d be rich. I’m pretty sure that those of us who live with fibromyalgia already know that stress effects the symptoms of fibromyalgia.' ~ Julie Ryan

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'Back in 2011 when i got the Diagnose Fibromyalgia, i was more than happy that my healthy problems now had a name. But after a while i realised, it changed nothing. I still have my pain, i still have to fight to get accepted.' ~ Bettina Bier

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'It's important to address both the physical and mental aspects of fibromyalgia in order to manage the condition effectively. The pain and limitations caused by fibromyalgia can increase the risk of developing depression and anxiety. ' ~ Thom Byxbe

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'I realize now that I take the approach with doctors that they are automatically going to doubt me. I explain to them that I understand my nociceptors are wacko, that I don’t perceive pain properly, that it’s like brain damage.' Dee Dee

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'Just because I'm smiling doesn't mean I'm pain free. I live in pain 24/7 but I refuse to let it stop me' ~ Bethan Catherine Jones at Hello Fibro Blog

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'I know what it’s like to feel out of control when it comes to symptoms such as pain, fatigue, memory loss, super-sensitivities, and dizziness. If you’re familiar with fibromyalgia, chronic fatigue, autoimmune challenges, and chronic illness in general, you know what I’m talking about.' ~ Sue Ingebretson

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'Yes, Fibromyalgia is incredibly painful. It’s not one type of pain, there are multiple ways of feeling that pain. The types of pain that people with chronic pain can feel also seem neverending... No wonder so many Fibromyalgia patients are physically miserable.' ~ Chronic Mom

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'The biggest change in my life that followed my fibromyalgia diagnosis was leaving my career because I just physically could not keep up any longer with the demands of the job. I’ve never felt more conflicted about making a decision.' ~ Katarina Zulak

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'Fibromyalgia is one of the most common types of chronic pain disorders. Awareness of fibromyalgia has increased and it has been accepted as a legitimate medical condition. Yet, fibromyalgia continues to be a hard-to-diagnose condition.' ~ Sue 

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'But the most distressing thing about Fibromyalgia is people not recognising, or even believing, that your experiences are real. Even today, there is still a significant lack of understanding around fibromyalgia in terms of its causes, diagnostics and how to best manage it.' ~ Barbara 

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'From the time the term ‘fibromyalgia’ was first used in the late 1990s to today, this condition hasn’t had many breakthroughs in the research/medical fields. And despite the millions diagnosed with fibromyalgia, it largely remains a mystery to many specialists, researchers, and organizations.' ~ Brandi 

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'It is no secret that my secret is that I have Fibromyalgia. I am living with an invisible, chronic illness that is beating me up while pretending otherwise. To the eyes of people, I am too young, too lively, too good looking or even too faithful to be sick (I know, I’ve heard it all).' ~ Kooki Honor

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'If you are like most people who have experienced ME/CFS, Fibromyalgia, POTS or a similar syndrome, there is a real sense of relief when you finally receive a diagnosis. At least you know what you have now, rather than being labelled a hypochondriac.' ~ Dan Neuffer

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'With fibromyalgia you need to:  Learn what feels good and what doesn’t. Accept your limits. Put these habits into practice.' ~ Emmie 

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'My chronic fatigue, that comes from a couple of my chronic illnesses, is the thing that has been bothering me the most. It stops me from doing a lot of the things that I love and I honestly feel so frustrated and annoyed when I cannot do the things I want.' ~ Beverley

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Wednesday

Raising Fibromyalgia Awareness in June.

May is Fibromyalgia Awareness Month worldwide but it is EVERY MONTH here and it is every day

You can learn more about fibromyalgia from people living with it by reading these blog posts. 

There is no catch here. We are not selling anything. We are trying to help raise awareness of this chronic pain condition. 

You can join in and help raise awareness this month by simply sharing this post or visiting and sharing some of the posts in this list. 

Raising Fibromyalgia Awareness

We hope you find some articles of interest to you here. We also have a larger directory of fibromyalgia blogs that you can view. That's why we are called Fibro Blogger Directory. 

June Fibromyalgia Awareness


Saturday

This Is Fibro for 2023 with Fibro Connect

Fibro Connect is our private facebook group to help people with fibromyalgia connect with others who have the same chronic pain condition and get their questions answered. 

We have a great group of men and women and for this year's Fibromyalgia Awareness Campaign we are doing This Is Fibro where we share our faces. On all social media we are using the hashtag #ThisIsFibro

We wanted to show that fibromyalgia can affect anyone and that people who look happy and healthy can be living with a chronic pain condition that keeps them in pain all day and all night. Fibromyalgia is mostly an invisible illness, though some people who have it may need to use, canes, walkers or wheelchairs and mobile devices due to pain, fatigue, foot problems and muscle stiffness.












You can join FIBRO CONNECT on facebook by answering two simple questions. 
You can see our awareness campaign in action at our Fibromyalgia Awareness facebook page and our twitter feed. We would love you to follow us there. 

Monday

Fibromyalgia Awareness in May 2023

I'm glad you could call in here to find out what we are doing this May to raise awareness of fibromyalgia. As you know May is internationally recognized as the month for Fibromyalgia Awareness with May 12th being Fibromyalgia Awareness Day. 

We are continuing with the This Is Fibro Campaign which we did last year.

This Is Fibro

It is so easy to join in. Just use the hashtag #ThisIsFibro on social media when sharing a post about fibromyalgia. 

If you are looking for something to reshare you can go to our social media accounts and reshare from there:

  •  Facebook - where we have a new page called Fibromyalgia Awareness
  • Twitter where we share posts 5 times or more a day and our account is called @FibroBloggers
  • Tumblr
  • Instagram - a new account 
  • Pinterest
So will you be joining in with us this month and using #ThisIsFibro  Please comment below so we know. It would be great to hear from you.

There are already some wonderful people joining in and we would love to introduce you to them. They are all amazing advocates for fibromyalgia, in their own ways, and you would be wise to check out their social media accounts and follow them.

πŸ’œ Cynthia Covert The Disabled Diva on Facebook, Twitter, Instagram, Pinterest.

πŸ’œ Melissa vs Fibromyalgia on Facebook, Twitter, Instagram, Pinterest.

πŸ’œRachel Barclift on Facebook, Twitter, Instagram.

πŸ’œSupport Fibromyalgia Network on Facebook, Twitter, Instagram.

πŸ’œMandy Farmer on Instagram, Pinterest.

πŸ’œThom Byxbe on Facebook, Twitter.

πŸ’œBindu at Beyond Fibromyalgia on Facebook, Twitter, Instagram.

πŸ’œGlenys R. Hicks on Instagram, Pinterest.

πŸ’œCarrie Kellenberger on Facebook, Twitter, Instagram, Pinterest.

πŸ’œSue Ingebretson on Facebook, Twitter, Instagram, Pinterest.

πŸ’œHelen's Journey on Twitter, Instagram, Pinterest and tumblr.

I'm sure there will be more fibromyalgia advocates joining us so please call back in again.

I hope you have a great month of May. 

Fibromyalgia Awareness in May