Showing posts with label Fibro Info. Show all posts
Showing posts with label Fibro Info. Show all posts

Thursday

What fibro bloggers have to say about fibromyalgia flares

Fibromyalgia flares—those unpredictable waves of intensified pain, fatigue, and brain fog—can disrupt even the most carefully managed routines, leaving those affected searching for relief and understanding. 

Across the blogosphere, fibro bloggers share their hard-won wisdom, offering a blend of practical strategies, emotional support, and personal insights to help others navigate these challenging episodes. 

From pacing techniques to dietary tweaks and mental health tools, their voices provide a beacon of hope and solidarity for the fibromyalgia community, showing ways to cope and thrive despite the condition’s ups and downs.

Tips for fibromyalgia flares

Having a fibromyalgia flare means you are experiencing an increase in pain or symptoms. Just as fibromyalgia varies from person to person, so do flares. These flares often leave the person without energy and unable to enjoy their normal daily activities. ~ Fibro Mom, Fibro Flares.

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When I get a flare up of Fibromyalgia I get: increased pain in most of my joints (notice the word increased), increased pain in my calf muscles, a headache - usually mild and in the temples and an electric feeling that I feel in my lower limbs and hands. ~ Lee Good, Fibro Files. 

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Am I depressed or in a flare? Am I flaring or suffering from depression? How, after all these years, damn near two decades of living with these conditions, can I not know the difference? A flare comes with insomnia and pain. Depression comes with a situational helplessness it doesn't seem will ever alleviate.~ Leah, Chronicles of F.I.B.R.O.

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New parts of body are joining in the fun of punishing my body. The brain is having a hard time concentrating-for those of you who know.it actually feels like its racing in your head. ~ Melissa, Fibro Warriors - Living Life. 

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I have had about four main flare-ups in the last twelve months that have needed me to take time off work and most of them have been no more than a week long. They do seem to all start in the same way with a sensation on my skin. The only way I can describe this is it feels like I am having a nettle rubbed all over me. It is both stingy and excruciatingly distracting and annoying. ~ Susan, Not all Flare-ups are the same.

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I’d like to note that it’s rarely one thing.

We typically have some sort of “incident” that happens, but when we really think about it, we can see how a set of circumstances combined to cause the flare. ~ Sue, Top 9 Reasons for a Fibro Flare.

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I am trying to keep my chin up and keep going, I think sometimes pain and fatigue can stop us in our tracks then we find our ways of coping; So when we flare it can be difficult to find our feet again... ~ Beverley, Blooming Mindfulness

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When a flare up happens the first thing most with Fibro think to themselves is ‘what did I do?’, the answer is invariably ‘nothing different’.  You stick to your routine, do all the self-management recommendations, and yet here you are.  This creates the conundrum for life with Fibro, you are never in control of your symptoms or what makes it worse, you never know if you will be able to function, and what you might be able to commit to. ~ Dale, And Here Comes a Flare Up

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TIPS FOR WHEN YOU ARE IN A FIBRO FLARE

When you learn to stop fighting the flares you will find they move on much faster.  It seems by default we want to fight the flare. We want to keep working and doing and going. We feel like we have all these things that we need to do and that just pushing through will get it done. But, fighting/pushing through the flare takes so much more energy. The better answer is to relax and give yourself permission to just rest. Focus on recovering and you’ll recover faster. This way you can return to the things you need to do and have the energy to do them with full focus. ~ Julie, 5 tips for getting through a Fibro Flare.

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Do something that makes you happy. You need to find something that makes you happy and will help you to feel mentally better even if you aren’t feeling good physically. This will look different for everyone, but it’s important to find something that works for you. ~ Chronic Mom, How to survive a chronic illness flare up

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Pacing... It helps me manage my flare ups... Pacing is a term used in the chronic illness community meaning to pace your activities and time. Basically taking breaks, doing things slower than you normally would and just being more aware of what overdoing it means each day. ~ Bethan, Tips on Pacing.

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My life got a lot easier once I bought myself a zero gravity chair from Walmart  (think: reclining lawn chair). I unfold it and put it wherever Chloe is playing, or by her crib while she falls asleep.  It’s pretty light and easy to drag around folded up to wherever I need it. The best part for me is that my back is comfortable in it. Usually I’m alert while I’m in it (unless it’s her nap time), so I can respond and interact with her but from a lying down position. ~ Katarina, Mom with Fibro: How I'm pacing while looking after a toddler.

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Everyone experiences fibromyalgia and flares differently. Some are sidelined in bed. Personally, I am not good at slowing down or resting, but years of experience has taught me when it is time to just stop so as not to prolong the episode, and practice some real self-care, along with medication as needed. ~ Cynthia, What is a Fibromyalgia Flare?

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Using heat and cold can be a great way to relieve pain and provide some comfort at home. You can use hot water bottles, microwavable wheat packs and heating pads. Heat can also be very comforting and even help you to drift off to sleep at night. ~ Caz, 6 Ideas for Natural Pain Relief.

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People might not tell you how debilitating Fibromyalgia can be but it can put your life on halt. The most important message I can share is to have a team of doctors and a therapist that supports your journey. ~ Melinda, Fibromyalgia Thoughts

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Pain patches –  I use them all the time. I use them mostly on my shoulders, neck, and back. They have enough topical pain medication in them to assist with tight muscles and fascia issues. The main ingredient in these patches is sodium diclofenac. ~ Carrie, My Fibromyalgia Flare Survival Kit.

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During times of intense flare-ups catching some zzz’s is an escape. I don’t have to suffer anymore. When I am asleep I don’t have to be in pain, or feel poorly, and my body doesn’t have to battle to keep going – it can rest. ~ Sarah, Why Sleep is So Important, My Reason

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Stress can trigger or worsen flares. Try mindfulness, meditation, or deep-breathing exercises to calm your nervous system. Also stay hydrated because dehydration can worsen fatigue and pain ~ Lee

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Stay Positive: Focus on the things you can control and find gratitude in the present moment. Cultivate a positive mindset by practicing gratitude journaling and reframing negative thoughts into more empowering ones. ~Thom, Conquer Chronic Pain

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The gentle heat seems to help switch your body from that heightened stress response into a more relaxed state. As the body is able to transfer out of stress response into states of relaxation, incidents of pain in the musculoskeletal system are reduced. ~ Sarah, The One Thing That Really Helps on My Worst Fibro Days – My Infra Red Sauna Blanket

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When you are in a flare, you must view food differently. If you know that you have an intolerance to certain foods, now is not the time to relent and eat them.
When you are in a flare you are looking to reduce inflammation, not add to it. Be very careful about what you eat and choose foods that will nourish your body and help it to heal. ~ Donna, How to Handle a Fibromyalgia Flare Up.

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Important Notes:

  • Fibromyalgia symptoms vary widely, so what works for one person may not work for another. Experiment cautiously and consult your healthcare provider before trying new treatments.
  • If you’re experiencing a severe flare or new symptoms (e.g., chest pain, shortness of breath), seek medical attention to rule out other conditions.
tips for fibromyalgia flares


Friday

Fibro Friday for July 2025

Welcome.  We are sharing 15 heartfelt and insightful articles from Fibro Bloggers bravely navigating life with Fibromyalgia. From practical tips for managing symptoms to raw reflections on the challenges of chronic illness, these stories offer wisdom, resilience, and insights for those living with this condition. 

Dive into this week’s collection below, and don’t miss the chance to explore previous weeks’ link-ups for even more inspiration and support.

Fibromyalgia articles written by those living with it


1. 5 best things to help with fibromyalgia symptoms\

2. We have to live through the hard times

3. When You're Overloaded Start A Mental Detox

4. The One Thing That Really Helps on My Worst Fibro Days

5. Fired for Being Sick: When Your Body Becomes a Liability

6. Back to…ADHD and Chronic Pain: Let’s Clear the Fog and Call Out the BS

7. Life with ADHD and Fibromyalgia, Told by Someone Living It (Messy Hair and All) 

8. Dear Stranger, When you live in a body that won’t cooperate, survival becomes its own full-time job, and no, it doesn’t come with benefits.

9. We must overcome illness

10. 5 disabled creators I love this Disability Pride Month

11. Coping with another fatigue flare

12. Chronic Pain Patients Reveal Hidden Truths to a Future Doctor

13. A wonderful place

14. Keeping My Creativity Fresh With Phone Photography

15. Pain Recognition from the NYT

Also you can take this opportunity to have a look at previous week's link-ups.

15 fabulous articles from Fibro Bloggers living with Fibromyalgia.


Many thanks to these wonderful fibro bloggers, maintaining their fibro blogs while living with Fibromyalgia:  This Fibro ChickDale RockellGlenys Robyn Hicks, Sarah Warburton, Beverley Butterfly, Janet Jay, Johanna Sr and Lee Good

Saturday

What fibro bloggers have to say about fibromyalgia

Fibromyalgia is a chronic pain disorder that can have a significant impact on a person’s lifestyle and mental health. It is a complex and often misunderstood condition. While medical definitions provide a clinical overview, the true essence of living with fibromyalgia is best captured through the voices of those who experience it first hand.

What people with fibromyalgia have to say about fibromyalgia

Here we delve into the personal narratives of fibro bloggers—individuals who courageously share their journeys, struggles, and triumphs on their blogs. 

From the relentless fatigue described by Ria at Stronger than Pain, who likens it to a "lead blanket" that never lifts, to the emotional toll highlighted by Bindu at Beyond Fibromyalgia, who speaks of the frustration in hearing doctors dismiss her pain as "all in your head," these accounts resonate deeply. Bethan at Hello Fibro Blog discusses the link between trauma and fibromyalgia, emphasizing the condition's complexity beyond physical symptoms.

These narratives not only validate the experiences of those living with fibromyalgia but also foster a sense of community and understanding. By sharing their stories, fibro bloggers provide support, raise awareness, and advocate for better recognition and treatment of this invisible illness.

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14 Fibromyalgia articles for you to read

 WELCOME! 

Here you can discover 14 fascinating articles on Fibromyalgia that provide valuable insights and support. You will find honesty about living with this condition, encouragement to keep going, and understanding when you feel like you cannot. 

We are helping to raise Fibromyalgia awareness and hope you will too by sharing this post so that more people can find helpful information about living with Fibromyalgia.

While you are here you may want to check out last months Fibro articles at the fibro blogs of many great writers. 

March Fibromyalgia link up

Fibro Friday in March


From Fibro Friday in March week 538


Find out more about these fabulous sharing and caring bloggers at their Fibro blogs by clicking on their names above. 

Videos from fibro bloggers

Do you have a video channel where you share information about fibromyalgia we would love you to link it up here. 

Videos about fibromyalgia from fibro bloggers


Nine interesting Fibromyalgia articles at Fibro Friday week 536

WELCOME to the Fibromyalgia link up in 2025.

You can learn so much about Fibromyalgia here... suggestions for diet improvements, activities that may help distract you from pain, tips for protecting your mental health, communication issues and tips for blogging when you have any chronic illness. 

These articles have all been written by men and women living with fibromyalgia and also other chronic illnesses. If you explore their blogs you will find a wealth of information. 

Fibromyalgia articles at Fibro Friday

 The Carb Conundrum: How one man is finding some reduction in his Fibromyalgia symptoms through dietary changes.


 The Surprising Benefits of Reading for Fibromyalgia:
Why You Should Snuggle Up with a Good Book is Sarah's suggestion for escaping stress and includes choosing the right book. 


 My plans and hopes for 2025. Beverley shares her goals for the year ahead which she sets as a strategy to help control her anxiety and achieve in small steps.
  


Please Don't Do Me Any Favors Communication means clarity, both ways. Sometimes that's slow and clunky and sometimes doesn't exist at all. Johanna shares her experience of trying to communicate her needs. 


 You're Doing All You Can, Now Chase Your Acorn. Dales neurologist shares his unusual prescription on coping with the challenges of fibromyalgia.  


 A Distraction Of Safari Park Photography has some great photos of animals that look stunning in black and white.
 

 Protecting your Mental Health in Winter. This article explains the Why and How of mental health and Beverley Butterfly shares her tips for getting through the darker, colder months.
 


When Fibro Forces You To Adapt To Stay CreativeDale explains changes he has made to photographic equipment so he can manage to keep doing his photography when living in pain.   
 

 Tips for Blogging with Chronic Illnesses. If you are considering blogging, these tips may help you.

Fibro Friday the Fibromyalgia link u
Thanks for joining in at Fibro Friday week 536
Dale from Fibro and Photos
Sarah from Musings on Life with Fibromyalgia
Beverley at Blooming Mindfulness
Johanna at Adventures of Motherhood

Thursday

The best Fibromyalgia articles of 2024

Here you will find interesting articles about Fibromyalgia on a wide variety of topics. All of these articles have been posted this year by fibro bloggers

best Fibromyalgia articles of 2024


Is Gabapentin for Fibromyalgia Safe? at Being Fibro Mom

Mom With Fibro: How I’m Pacing While Caring For My Toddler at Skillfully and Painfully Aware.



Fibromyalgia and Covid-19 at Living Creatively with Fibro


When you got no spoons everyone has to help! at Australian Sacrificial HomeKeeper

Merlin The Happy Heathen: Art For Fibromyalgia Interview at My Several Worlds


A day in the life of a Fibro warrior with Bettie G at Mandy and Michelle

The Best Type of Heat To Help You Feel Better at Pain Chronic Words Iconic 

How to get moving with fibromyalgia – Mental Health Awareness Week 2024 at the Invisible F


The Age Conundrum at Fibromy What?


Eyes and Fibromyalgia at Fibro Files

Couch to 5K with Fibromyalgia – an impossible mission? at Musings on Life with Fibromyalgia

Friday

Fibro Friday week 523

WELCOME and glad you could join us in promoting awareness and understanding of fibromyalgia. 

Thank you and thank you to these 4 great bloggers for joining in and welcoming us to their sites. 

Please use the social media buttons to spread the word about fibromyalgia and support some fibro blogs. 

Fibro Friday Fibromyalgia linky

1. Living With Fibro Is A Full Time Job is a post by Dale Rockell from his fibro blog Fibro & Photos. Find out more about why he thinks this 

2. SLEEP AND MEDITATION THERAPY. Find out why Barbara, aka blogger Bar, recommends this at her blog Back Pain UK. 

3. Fibromyalgia, Nutrivore and me is a post by Melissa. Find out how she follows the Nutrivore approach to benefit her health at her blog Going My Own Pace. 
 
4. No shanks as pony is a post describing Glenys's new experience with shanks pony. The phrase is a colloquial expression that has been used for centuries in the English language and has its roots in the rural areas of Britain. Read about this fibro bloggers involvement with it. 

Fibro Friday blog linky

You might be interested in more fibromyalgia articles written by men and women living with fibro. There are seven more here

Fibro Friday week 521

 WELCOME to Fibro Friday a link-up all about Fibromyalgia. We hope it helps others to understand more about Fibromyalgia and its many challenges. 

Fibro Friday blog linky

While you are here please take this opportunity to have a look at previous week's link-ups or share some of these fibro blogs on your own social media.

 The Constant Fibro Challenge Of Sleep has some simple suggestions for getting more sleep
  

A Journey Through The Fog A short fibro story describing a day in the life of someone with fibromyalgia.
  
 Things that make fibromyalgia worse is a video about delayed diagnosis and under treatment in Fibromyalgia. 
 
 Skin-Related Fibromyalgia Symptoms explains the why and what of skin conditions that are often seen with fibromyalgia.
 

Cooling Blanket Review is an honest review of the Marchpower cooling blanket. 
 

10 Tips for Newly Diagnosed Fibromyalgia Sufferers… has practical suggestions that you may not have considered to make your life easier.
 

A Primer for Pain Awareness Month This September includes what is chronic pain, its impact on daily life, treatment options, the impact on mental health and a free download on non verbal signs of pain.
  

Fibro Friday the fibromyalgia blog linky

Thank you for joining us today and thank you to 
Dale Rockell, 
This Fibro Chick, 
Melissa Reynolds, 
Sue Vickers, 
Cynthia the Disabled Diva, 
Blogger Bar 
and Carrie Kellenberger 
for sharing their fibro blog posts this week. 

Sunday

Raising Awareness of fibromyalgia - 11 articles

Thank you to all these excellent fibro bloggers working hard to help raise the awareness of fibromyalgia in their own special ways. We appreciate you sharing your stories, tips, news and research into this chronic pain condition. 

articles raising Awareness of fibromyalgia

CBD it's Benefits and Awareness Day 8th August. Barbara shares some info about CBD and its potential benefits in easing chronic pain in fibromyalgia. The article highlights the growing popularity of CBD products, which are now found in a wide range of everyday items from beverages to skincare. Once mainly embraced by cannabis enthusiasts, CBD is gaining traction in mainstream wellness for its potential to naturally relieve symptoms of anxiety, pain, insomnia, and other conditions.

Habits that help chronic illness. Melissa explains the wellness habits that she uses and the order in which she prioitises them to help her feel better when living with fibromyalgia and ME/CFS. The article discusses how living with chronic illness, particularly conditions like fibromyalgia and ME/CFS, reshapes the typical wellness order. For those affected, sleep and rest become the top priorities, forming the foundation for all other health goals.


Visiting the Pain Clinic includes Dale's positive experience when visiting the pain clinic, his realisations about what he is doing right to help reduce fibro symptoms and his recommendations for others. The experience reinforced the importance of self-management, preparation, and persistence—despite the physical toll the visit took... 


Oxygen Therapy. Dale gives us an update on this interesting therapy and his challenging week with a fibro flare and a therapy session and a chance to catch up with others who are trying this therapy. 


Fibromyalgia Explained: Thom explains Diagnosis, Treatments, and Coping Strategies for fibromyalgia and provides a comprehensive understanding of fibromyalgia, its symptoms, causes, and effective management strategies. 


Fibromyalgia Pain: Thom explains his view for the urgent need for comprehensive understanding and empathy from the medical community not just about the pain of fibromyalgia but about the misunderstandings and lack of adequate research and treatments.


Finding Myself after Fibromyalgia. Johanna recounts her difficult journey with fibromyalgia, from mysterious symptoms and fear to misdiagnoses and failed treatments. She describes the emotions and symptoms and ups and downs after being diagnosed with fibro and the realisations she has had. 
 

Fibromyalgia: The Invisible Disease. This Fibro Chick discusses all the aspects of invisibilty in fibromyalgia including the importance of addressing this problem.The article also explores the emotional and psychological impacts of living with a condition that others may not understand or believe.


Top tips for the newly diagnosed. Alisha shares tips from her fibro friends from all around the world who have fibromyalgia so that if you are newly diagnosed with fibro you will not feel so alone.


A Coloring Adventure for Spoonies My Several Worlds Coloring Adventure for Spoonies offers pages of inky delight to remind you that you are strong, beautiful, and uniquely you. You are NOT broken! This book is made for Spoonies by a full-time Spoonie who has been using art as a coping tool for chronic illness and chronic pain since 2009.


A little time to slumber is a poem by Glenys R. Hicks about her day when living with fibromyalgia and other chronic illnesses.

articles Raising Awareness of fibromyalgia


From Fibro Friday week 517

Friday

13 Fibromyalgia articles for you at Fibro Friday week 518

WELCOME to you and a big THANK YOU for visiting the fibro link up today. It would be wonderful if you could visit some of the links below. Just click on the purple coloured links to be taken to interesting articles about overheating, managing fibromyalgia and 4 children, mysteries and secrets of fibro and unique treatment ideas such as art therapy and oxygen therapy. You can also ask any fibro questions you might have of Jools at her blog. (No. 10). We even have a doctor joining in sharing his research into Fibromyalgia and neck pain (No. 12).

Thanks to everyone working hard to raise fibromyalgia awareness by sharing these articles here. 


1. Why Is Photography A Therapy For Life With Fibromyalgia? by Dale Rockell at Fibro & Photos. 

2. Oxygen Therapy Update - Week Five from Dale Rockell

3. Oxygen Therapy Q&A: What If I Have Ear Problems? from Dale Rockell

4. Navigating Fibromyalgia For Men: A Spiritual Journey of Love and Healing at Thom Byxbes Research Desk

5. Unveiling the Mysteries of Fibromyalgia at Thom Byxbes Research Desk

6. DRINK WATER TO HELP AVOID BACK PAIN… by Barbara at Back Pain Blog UK

7. Secrets of Fibromyalgia by Johanna at Adventures in Motherhood

8. Habits I prioritise as a mama of four with fibromyalgia by Melissa Reynolds at Going My Own Pace

9. Chronic Illness Joke Series: WASHING UP OVERLOAD! at Helen's Journey 

10. Ask me Anything about Fibromyalgia by Jools at My Life With Fibromyalgia

11. My thermostat's broken! by Glenys at australian Sacrificial Home Keeper

12. Key to the Fibromyalgia Syndrome Examination by John W. McFadden, M.D. and independent Fibromyalgia researcher at Research Gate

13. Art Therapy for Chronic Pain: How I Use Art To Thrive with Chronic Illness by Carrie Kellenberger at My Several Worlds


Fibro Friday linky week 518

Fibro Friday week 515

 WELCOME to Fibro Friday a link-up all about Fibromyalgia. It starts every Friday and runs almost all week. 

You will love these links if you are looking for alternative treatments and ideas for managing fibromyalgia and other chronic pain conditions. 

This week we have articles about sleep and chronic illness, spiritual and mindfulness practices, motivational tips, alternative treaments such as CBD oil, oxygen therapy and foot reflexology, disability pride, nutrition benefits and being old. 

While you are here please take this opportunity to have a look at previous week's link-ups.



1.HOW PAIN CAN EFFECT YOUR SLEEP PATTERNS is full of interesting facts about sleep when you are living with chronic illness.

2. A Purposeful Path Through the Fog of Fibromyalgia describes how to align your daily life with a spiritual path. 

3. Conquer Chronic Pain & Fatigue: 10 Expert Tips to stay motivated and lead a fulfilling life even when living in constant pain. 

4. Increasing Social Activity For Wellbeing And Inspiration talks about the challenges of increasing social outings and activities when living with fibromyalgia.

5. The body scan and fibromyalgia: The What, Why and How of The Body Scan Meditation including a video and a book suggestion about this mindfulness practice.

6. Oxygen Therapy Update - Week Two is a sharing of personal experiences of Hyperbaric Oxygen Therapy (HBOT) sessions. It describes what a session is like and the improvements that have happened. 

7. Foot Reflexology for Chronic Pain & Fibromyalgia descibes this alternative treatment and how it treats chronic ain.  If you have ever felt like you are walking on shards of glass all the time, or your feet and legs are swollen it will be useful to read this article.

8. Top Qs about Invisible Illnesses & Disability Pride Month answers some of the top questions people with invisible illnesses, including chronic pain and mental health issues, ask about disability pride, disability rights, and disability.

9. It doesn't take much is about looking after your health through eating nutritious meals with the extra motivation of doing it for your twin sister. (Both twins have fibromyalgia and other chronic conditions.

10. The only perk of being old. Find out what it is here. (At least for those living in Australia. 

11. Breakthrough Study: Anarti’s Ayurvedic CBD Oil Shows Promising Results in reducing inflammation.


alternative therapy for fibromyalgia