Welcome to the Fibro PINTEREST Directory, 2023 version - a directory of people who PIN about fibromyalgia. Get on board and connect with the growing community on Pinterest.
Please add your Pinterest URL here and follow some of the other fibromyalgia pinners.Sunday
Thursday
Who to follow on twitter if you have fibromyalgia
Whether you have fibromyalgia, or a loved one who has, or you are looking for more information about this chronic pain condition following these accounts on twitter will help you.
Of course all these suggestions are our wonderful fibro bloggers who are in Fibro Blogger Directory. They live with fibromyalgia and they blog about it.
To be in this list of Who To Follow on Twitter they need to tweet regularly and tweet mostly, or more than half the time, about fibro and chronic illness related topics.
This list is in no particular order.
Who To Follow on Twitter if you have Fibromyalgia. #WhoToFollow
Once Upon A Fog Blog, advice from a purple ๐ฆ @rachelbarclift "Welcome! I'm a wife, writer and artist. My posts help to spread chronic illness, Fibromyalgia and mental health awareness." #fibroblogger #author #illustrator https://twitter.com/rachelbarclift
Beyond Fibromyalgia @BeyondFibro Nurture, Balance, Integrate ❤ Body, Heart, Mind and Spirit https://twitter.com/BeyondFibro
Melinda @LookingLight Life Lover, #Photographer, #Lyme, #Spoonie, #ChronicPain, #Chronic Illness, #MentalHealth #Advocate, #LifeStyle Blogger, #Fibromyalgia & #BookReviews https://twitter.com/LookingLight
Cynthia Covert, The Disabled Diva @TheDisabledDiva Journaling through life with multiple chronic conditions and sharing passion, tips, and journal prompts with you! https://twitter.com/TheDisabledDiva
InvisiblyMe @invisiblymeblog Blogger & Freelance Writer Living With Chronic Illness & Pain. InvisiblyMe : Health, Lifestyle, Wellbeing, Leisure, Finances, News & Reviews. https://twitter.com/invisiblymeblog
Katarina @annakatarinaz Blogger, health writer, aspiring mystery novelist | wife, cat slave| history nerd, mystery reader, nature photographer| https://twitter.com/annakatarinaz/
๐ธ๐๐๐๐๐๐ ๐ฎ๐๐๐๐๐ ๐๐๐๐ ๐ฒ๐๐๐๐ฒ๐ @GlenysRHicks Australian great-grandma. Feeling the Hope of which we speak: #Jesus #Rapture #dispensational #Maranatha #blog #ProLife #Messianic https://twitter.com/GlenysRHicks
SarahW @sswarbo A slow-paced life, but finding joy every day. Always tired, almost always in pain. Loves writing & nature. #fibrowarrior #spoonies #chronicillness https://twitter.com/sswarbo
๐ฃHelen's Journey๐ฃ (Blogger & Poet๐) @helens_journey GreenLiving๐ Encouragement๐๐ผ♀ & Poetry BLOG. "Follow my spoonie footsteps exploring more NATURAL ways to Life/Health & Wellbeing. " FIBROMYALGIA Fighter ๐✝ https://twitter.com/helens_journey
Carrie Kellenberger - MySeveralWorlds.com @globetrotteri ♿️ I write so you can better understand #axSpA #Spondylitis #Fibromyalgia #ChronicPain #MECFS #Arthritis ๐ Former world traveler ➡️ Veteran patient advocate https://twitter.com/globetrotteri/
Me, Myself and Chronic Illness Blog @me_illness #chronicillness #introvert - Chronic illness blogger and writer who talks about personal experience of Fibro, M.E, UCTD, Tourette's, PCOS and mental health. https://twitter.com/me_illness
BettinaBier @BettinaBier Living with #Fibro | Enjoy the little things in life | Love to be creative | Love my dog ๐พ❤ | Germany, Cologne https://twitter.com/BettinaBier
Cynthia Baughman @photobaugh Strategy | Leadership | Technology | #Cybersecurity | #Fibromyalgia | Finding Inspiration in Everyday Life | CA girl living in TX https://twitter.com/photobaugh/
Alisha Nurse @AliApow Curry-loving writer & NHS comms professional. I blog about life with fibromyalgia and depression at http://theinvisiblef.com https://twitter.com/AliApow
Melissa vs CFS/FMS @thefibromamaOn a mission to be as well as possible with fibromyalgia & chronic fatigue syndrome. I do yoga in bed & chairs -get your free GENTLE #yogaforfibromyalgia series https://twitter.com/thefibromama
Dan Neuffer @cfsunravelled ME/CFS/Fibro Recoverer, Author and speaker helping people with #MECFS,#Fibro, #POTS #ChronicFatigue #CFIDS,#MCS,#Fibromyaligia see that RECOVERY IS POSSIBLE! https://twitter.com/cfsunravelled
BloggerBarbara @BloggerBar Chronic back pain sufferer and keen freelance blogger. I love to write about #ChronicPain #BackPain,#Fibromyalgia, #Health, #AlternativeTherapies #cakes https://twitter.com/BloggerBar
Sue Ingebretson @SueInge Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack https://twitter.com/sueinge
Brandi Privitera @beingfibromom Brandi is a Navy veteran and work-from-home mom passionate about helping parents living with fibromyalgia better care for themselves and their families. https://twitter.com/beingfibromom
The life of a 20 something living with fibromyalgia. England, United Kingdomhttps://twitter.com/fibrohello
Not everyone in Fibro Blogger Directory is on twitter so you may like to see the full Directory of bloggers here. Also many of our bloggers are on facebook and you can find that list here.
Tuesday
Timezone Tweaks for social media (when to post on social media)
These Timezone Tweaks, for when to post on social media, will be very helpful and simplify your social media sharing and scheduling. These suggestions, designed for any social media platform, will ensure that even if you only post twice a day you will be reaching the most people all around the world.
- 8am UK time/12am Pacific Daylight Time.WHY post at 8 am? UK is looking at their phones on the way to work or on their computers before work at home.Los Angeles is up late browsing.Most UK content is posted in the daytime, so you get ahead of the crowd, and if your post does well, it’ll be the first thing the west coast Americans see when they wake up.
8am is 3am Toronto, Canada time
9pm in Wellington, New Zealand4pm in Taipei, Taiwan5pm Sydney, Australia time 12.30pm India9am Germany, Sweden, Italy etc (Central European Time)12 am Pacific Time3am Eastern Time2am Ukraine
- 4pm UK time/8am pacific.
WHY post at 4pm? 4pm UK time was largely found to be the time UK people spend on social media, so a good time slot in the UK, and you catch the west coast of the USA on their way to workThat's 11am Toronto, Canada10 am in Houston, Texas3am in Sydney, Australia.6pm Ukraine12 am Taipei
5pm Germany (Central European Time)
8.30pm India
- 8pm UK time/12pm pacific.WHY post at 8 pm? Possibly the most important time slot of the day to post on social media as it is a hyper active time slots in both territories. (UK and USA) There is a lot of competition for this time slot with other posts, and UK people aren’t online as much, but if you nail all three timeslots you’re winning.That's 7am Sydney, Australia3pm in Toronto, Canada4am Taipei, Taiwan9am Auckland, New Zealand3pm Washington, USA
9pm Germany, Sweden, etc. (Central European Time)10pm Ukraine
Let's get personal
So for me in Sydney Australia I should be posting at 5pm, 3am and 7am my time.
What about you?
If you are in Central European Time that's Algeria, Austria, Belgium, Bosnia-Herzegovina, Croatia, CzechRepublic, Denmark, France, Germany, Hungary, Italy, Netherlands, Norway, Poland, Serbia, Spain, Sweden, Switzerland 9am, 5pm and 9pm are your best posting times if you are trying to be seen by UK and US readers.If you are in Toronto and Ontario Canada and New York it's 3am, 11am and 3pm.
If you are in Central Time that's Alabama, Iowa, Louisiana, Minnesota, it's 2am, 6am and 2pm.
If you are in China, Macao, Taipei, Taiwan it's 4pm, 12am and 4am.
If you are in Eastern European Time that's Finland, Jordan, Greece, Latvia, Russia, Romania, Ukraine it's 2am, 6pm and 10pm.
If you are in Nevada, California, Oregon, Washington, Idaho, British Columbia, Yukon and Baja California it's 12 am, 8am and 12pm.
Wednesday
Pinterest Tips and Tricks: manual pinning and fresh content
We recommend an image that is at least 1000 px x 1500 px. This image is 735 px x 1102 px.
So according to pinterest, and straight from the horses mouth, as the saying goes, my pins have been too small. It makes great sense to me to create pins that are the size recommended by the actual platform so this is what I have just started doing. I will report back on my experiment with larger pins soon.
I have been using Canva to create my pins and just love it. Here is a tip to create these larger sized pins there...
- Log into your canva account
- Open Create a Design which is in the top right hand corner
- Add your dimensions (1000 px in Width and 1500 px in Height)
- Click Create new design and canva will create the template for you to start using. It's so simple!
I have also started using pinterest's manual pinning and will report back if this helps increase click through's to this site as suggested by many pinterest experts.
I have also gained some useful insights from watching a video with Pinterest Partnership Manager, Lucy Matthews, who is one of their representatives. You can watch the video on facebook but here are my major takeways if you don't have time:
- Pinners want fresh content that is recent and relevant.
- As long as the image is fresh the pin is counted as fresh content.
- Focus on unique, new images to be fresh.
- This fresh content will be shown and reach larger audiences.
- Duplicate content will be shown less and possibly considered as spam. She would not share details on actual numbers on how much duplicate content would be considered spam.
- Pinterest is partnered with Tailwind who make sure that pinners use up to date practices.
- If you are saving the same article to many boards try to use a few different "fresh pins".
- Stay up to date with pinterest through their Best Practices updates or through Tailwind.
- A creator is someone who publishes content and a pinner is someone who pins on pinterest.
- Best practices will continue to evolve over time.
RESOURCES mentioned here:
Monday
The Fibromyalgia Facebook Directory
Facebook is a great place to catch up with others who have fibromyalgia. Here we have a great guide of so many people who are on facebook and who have fibromyalgia. Connect with them there, join in the conversations and find out more about their experiences of fibromyalgia.
If you have a facebook page that is all about fibromyalgia we would love you to link it up here. You can get connected with a large facebook community who are all sharing what matters to them about living and coping with fibromyalgia.
Pinterest Tips and Tricks: Pinning More Often
Pin more often, and space out your pinsPerhaps the best change we’ve made to our Pinterest engagement of late is to pin more often.We’ve gone from pinning once or twice a day to pinning 10 times per day.As a result, we’ve seen 150 percent more engagement on Pinterest.
Space these pins out across the day, and make sure you pin in the afternoon and evening, as those are the best times for pin engagement. ~ Social Media Examiner
I will also be taking on board the above advice about when to pin and checking out the times for the part of the world where my main audience is coming from.
PINTEREST MONTHLY ENGAGEMENT ON BUFFER |