Showing posts with label Social Media. Show all posts
Showing posts with label Social Media. Show all posts

Thursday

Why Hashtags Matter for #Fibromyalgia & #ChronicIllness on X

Living with fibromyalgia or any chronic illness can feel isolating—but hashtags are more than just metadata. They’re lifelines. 

Hashtags for Fibromyalgia on X


To maximize visibility for fibromyalgia and chronic illness articles written by people living with fibromyalgia on X, use hashtags that are popular, relevant, and commonly used within the chronic illness and fibromyalgia communities.

Here's how to use them to connect, advocate, and be heard. 👇

1️⃣ #Fibromyalgia The go-to tag for everything from symptoms to support. Use it to share your story, raise awareness, or find others who truly get it.

2️⃣ #Spoonie A beloved term in the chronic illness world. It’s not just a hashtag—it’s an identity. If you live with limited energy, this one’s for you.

3️⃣ #ChronicIllnessWarrior Because surviving daily pain is no small feat. This tag celebrates strength, resilience, and the fight for visibility.

4️⃣ #InvisibleIllness Not all pain is visible. This hashtag helps challenge stigma and educate others about what they can’t see.

5️⃣ #FibroFlare Use this to describe those tough days when symptoms spike. It’s a way to vent, find empathy, and track patterns.

Tip: Combine 3–5 hashtags per post. Mix broad ones like #ChronicPain with niche ones like #FibroLife to reach both communities and curious readers.

Hashtags aren’t just for reach—they’re for recognition. They help turn your lived experience into a voice others can find, follow, and feel seen by.

Here’s a curated list of the most effective and widely used hashtags on X (formerly Twitter) for articles written by people living with fibromyalgia and chronic illness. These hashtags help amplify visibility, connect with supportive communities, and engage readers who resonate with lived experiences. Based on current trends and community engagement, here are some of the best hashtags to use:

Top Hashtags for Fibromyalgia

These are commonly used by those sharing personal stories, advocacy, and resources:

  • #Fibromyalgia

  • #Fibro

  • #FibroWarrior (while some may not like to be identified as a warrior, this is widely used)

  • #FibromyalgiaWarrior

  • #FibroLife

  • #FibroAwareness

  • #FibromyalgiaAwareness

  • #LivingWithFibro

  • #FibroCommunity

  • #FibroFlare

  • #FibroStrong

Top Hashtags for Chronic Illness

Great for broader reach and where content can have diverse angles:

  • #ChronicIllness

  • #ChronicPain

  • #ChroniLife

  • #InvisibleIllness

  • #Spoonie (widely used by people with chronic conditions)

  • #SpoonieLife

  • #ChronicFatigue

  • #AutoimmuneDisease

  • #DisabilityAwareness

  • #ChronicIllnessWarrior

  • #ChronicPainWarrior

  • #ChronicIllnessAwareness

Mental Health & Emotional Support Tags

These are especially useful if your articles touch on emotional resilience or mental health:

  • #MentalHealth

  • #Anxiety

  • #Depression

  • #HealingJourney

  • #SelfCare

 Tips for Using Hashtags on X

  • Mix niche and broad tags: Combine specific ones like #FibroFlare with broader ones like #ChronicIllness.

  • Limit to 3–5 per post: X favors concise tagging for engagement.

  • Engage with the community: Like, reply, and retweet others using similar hashtags to build visibility.

Share your favorite hashtags in the comments. Let’s build a thread of support 💜👇 #FibroCommunity #SpoonieLife #DisabilityAwareness #MentalHealth

Why Hashtags Matter for Fibromyalgia & Chronic Illness on X


The Ultimate Instagram Directory for Fibromyalgia

Instagram Directory for Fibromyalgia 2025

Welcome to the Ultimate Instagram Directory for Fibromyalgia!
Looking for a comprehensive list of Instagram accounts focused on Fibromyalgia? You’ve come to the right place!

We’ve gathered a wide range of amazing Fibro-focused profiles, all in one convenient spot. Whether you're here to connect, learn, or spread awareness, we hope this directory makes it easier to find and support the Fibromyalgia community.

Don’t forget—following, liking, and commenting on these accounts helps raise awareness and keep the conversation going on Instagram!

If you have not been included and would like to be just let me know your instagram name and url in the comments. 😉

1. fibrobloggers  
2. My Several Worlds
3. Carrie Kellenberger - Fibro Blogger  
4. Helen's Journey - Fibro Warrior / Blogger / Poet  
5. Fibro & Photos with Dale Rockell  
6. Morning Cuppas with Glenys 
7. Pain: Chronic / Words: Iconic (JanetJay.com)  
8. the_disabled_diva  
9. windys journey  
10. sue.ingebretson  
11. danneuffer.cfsunravelled  
12. Hello Fibro Blog  
13. Living Creatively With Fibro  
14. CocoLime Fitness  
15. Melissa N Reynolds  
16. Turning pain into strength  
17. 

Alisha Nurse


The Ultimate Instagram Directory for Fibro

Sunday

The Ultimate Fibromyalgia Pinterest Directory 2023

Welcome to the Fibro PINTEREST Directory, 2023 version  - a directory of people who PIN about fibromyalgia. Get on board and connect with the growing community on Pinterest.

Please add your Pinterest URL here and follow some of the other fibromyalgia pinners.

Fibromyalgia Pinterest Directory 2023







Fibromyalgia PINTEREST Directory 2023

Thursday

Who to follow on twitter if you have fibromyalgia

Whether you have fibromyalgia, a loved one who has it, or you're simply looking for more information about this chronic pain condition, building a supportive social media network is crucial.

Who to follow on twitter if you have fibro

Why Twitter/X Matters for the Fibro Community

When living with an invisible and often misunderstood chronic illness like fibromyalgia, Twitter/X can be a lifeline. It offers a dynamic space that your immediate circle sometimes can't:

  • Validation and Empathy: See your daily struggles—from fibro fog to chronic fatigue—reflected in real-time posts from people who truly get it.

  • Real-Time Tips and Hacks: Get immediate, practical advice on coping with flares, dealing with doctor's appointments, or navigating disability issues.

  • Break the Isolation: Chronic illness can be incredibly isolating. Following active fibro accounts helps you feel connected to a global community that is supportive and non-judgmental.

  • Stay Informed: Keep up with the latest research, treatment options, and advocacy efforts from the community leaders.

Of course, all the suggested accounts are our wonderful fibro bloggers who are part of the Fibro Blogger Directory. They live with fibromyalgia and they blog about it.

Who To Follow on Twitter if you have Fibromyalgia. #WhoToFollow

Carrie Kellenberger - MySeveralWorlds.com @globetrotteri ♿️ I write so you can better understand #axSpA #Spondylitis #Fibromyalgia #ChronicPain #MECFS #Arthritis 🌏 Former world traveler ➡️ Veteran patient advocate https://twitter.com/globetrotteri/

Dale Rockell @DaleRockell

Photographer, Fibromyalgia advocate & Blogger/Vlogger.
UKbit.ly/2WEthY5Born July 19Joined March 2009

InvisiblyMe @invisiblymeblog Blogger & Freelance Writer Living With Chronic Illness & Pain. InvisiblyMe : Health, Lifestyle, Wellbeing, Leisure, Finances, News & Reviews. https://twitter.com/invisiblymeblog

SarahW @sswarbo A slow-paced life, but finding joy every day. Always tired, almost always in pain. Loves writing & nature. #fibrowarrior #spoonies #chronicillness https://twitter.com/sswarbo

👣Helen's Journey👣 (Blogger & Poet📝) @helens_journey GreenLiving💚 Encouragement💆🏼‍♀ & Poetry BLOG. "Follow my spoonie footsteps exploring more NATURAL ways to Life/Health & Wellbeing. " FIBROMYALGIA Fighter 💜✝ https://twitter.com/helens_journey

Sue Ingebretson @SueInge Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack https://twitter.com/sueinge

Beyond Fibromyalgia @BeyondFibro Nurture, Balance, Integrate ❤ Body, Heart, Mind and Spirit https://twitter.com/BeyondFibro

Katarina @annakatarinaz Blogger, health writer, aspiring mystery novelist | wife, cat slave| history nerd, mystery reader, nature photographer| https://twitter.com/annakatarinaz/

Me, Myself and Chronic Illness Blog @me_illness #chronicillness #introvert - Chronic illness blogger and writer who talks about personal experience of Fibro, M.E, UCTD, Tourette's, PCOS and mental health. https://twitter.com/me_illness

BettinaBier @BettinaBier Living with #Fibro | Enjoy the little things in life | Love to be creative | Love my dog 🐾❤ | Germany, Cologne https://twitter.com/BettinaBier

Cynthia Baughman @photobaugh Strategy | Leadership | Technology | #Cybersecurity | #Fibromyalgia | Finding Inspiration in Everyday Life | CA girl living in TX https://twitter.com/photobaugh/

Alisha Nurse @AliApow Curry-loving writer & NHS comms professional. I blog about life with fibromyalgia and depression at http://theinvisiblef.com https://twitter.com/AliApow

Melissa vs CFS/FMS @thefibromama Fiction author and chronic illness advocate. On a mission to be as well as possible with fibromyalgia & chronic fatigue syndrome. I do yoga in bed & chairs -get your free GENTLE #yogaforfibromyalgia series https://twitter.com/thefibromama

Dan Neuffer @cfsunravelled ME/CFS/Fibro Recoverer, Author and speaker helping people with #MECFS,#Fibro, #POTS #ChronicFatigue #CFIDS,#MCS,#Fibromyaligia see that RECOVERY IS POSSIBLE! https://twitter.com/cfsunravelled

BloggerBarbara @BloggerBar Chronic back pain sufferer and keen freelance blogger. I love to write about #ChronicPain #BackPain,#Fibromyalgia, #Health, #AlternativeTherapies #cakes https://twitter.com/BloggerBar

Brandi Privitera @beingfibromom Brandi is a Navy veteran and work-from-home mom passionate about helping parents living with fibromyalgia better care for themselves and their families. https://twitter.com/beingfibromom

Hello Fibro Blog @FibroHello
The life of a 20 something living with fibromyalgia. 
England, United Kingdomhttps://twitter.com/fibrohello

Fibro Bloggers @FibroBloggers connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at fibrobloggerdirectory.com #FibromyalgiaAwareness #FunnyFibro #FibroFriday https://twitter.com/FibroBloggers

Not everyone in Fibro Blogger Directory is on twitter so you may like to see the full Directory of bloggers here. Also many of our fibro bloggers are on facebook and you can find that facebook list here.

Who to follow on twitter if you have fibro

 


Tuesday

Timezone Tweaks for social media (when to post on social media)

These Timezone Tweaks, for when to post on social media, will be very helpful and simplify your social media sharing and scheduling. These suggestions, designed for any social media platform, will ensure that even if you only post twice a day you will be reaching the most people all around the world.

Timezone Tweaks for social media or when to post on social media
TIMEZONE TWEAKS when posting on any social media (according to Vin Clancy- social media addict and growth hacker). Vin's focus in these helpful suggestions focuses on UK and USA as being the most important audiences. I have found, that as well as these two countries, I get readers from many other countries so I've added many different times in. I have not taken into consideration daylight savings as that just makes it all too difficult! I hope what I've done helps you. 
We should be posting at:
  • 8am UK time/12am Pacific Daylight Time.
    WHY post at 8 am? UK is looking at their phones on the way to work or on their computers before work at home. 
    Los Angeles is up late browsing.
    Most UK content is posted in the daytime, so you get ahead of the crowd, and if your post does well, it’ll be the first thing the west coast Americans see when they wake up.

    8am is 3am Toronto, Canada time
9pm in Wellington, New Zealand
4pm in Taipei, Taiwan
5pm Sydney, Australia time 12.30pm India
9am Germany, Sweden, Italy etc (Central European Time)
12 am Pacific Time
3am Eastern Time
2am Ukraine

  •  4pm UK time/8am pacific.

WHY post at 4pm? 4pm UK time was largely found to be the time UK people spend on social media, so a good time slot in the UK, and you catch the west coast of the USA on their way to work
That's 11am Toronto, Canada
10 am in Houston, Texas
3am in Sydney, Australia.
12 am Taipei 
6pm Ukraine 
5pm Germany (Central European Time)
8.30pm India
  • 8pm UK time/12pm pacific.
    WHY post at 8 pm? Possibly the most important time slot of the day to post on social media as it is a hyper active time slots in both territories. (UK and USA) There is a lot of competition for this time slot with other posts, and UK people aren’t online as much, but if you nail all three timeslots you’re winning.
    That's 7am Sydney, Australia
    3pm in Toronto, Canada
    4am Taipei, Taiwan
    9am Auckland, New Zealand
    3pm Washington, USA
9pm Germany, Sweden, etc.  (Central European Time)
10pm Ukraine
Timezone Tweaks for social media

 Let's get personal

So for me in Sydney Australia I should be posting at 5pm, 3am and 7am my time.

What about you?

If you are in Central European Time that's Algeria, Austria, Belgium, Bosnia-Herzegovina, Croatia, CzechRepublic, Denmark, France, Germany, Hungary, Italy, Netherlands, Norway, Poland, Serbia, Spain, Sweden, Switzerland 9am, 5pm and 9pm are your best posting times if you are trying to be seen by UK and US readers.

If you are in Toronto and Ontario Canada and New York it's 3am, 11am and 3pm.

If you are in Central Time that's Alabama, Iowa, Louisiana, Minnesota, it's 2am, 6am and 2pm.

If you are in China, Macao, Taipei, Taiwan it's 4pm, 12am and 4am.

If you are iEastern European Time that's Finland, Jordan, Greece, Latvia, Russia, Romania, Ukraine it's 2am, 6pm and 10pm. 

If you are in Nevada, California, Oregon, Washington, Idaho, British Columbia, Yukon and Baja California it's 12 am, 8am and 12pm.


Timezone Tweaks for social media (when to post on social media)

If you are looking for more help with your blog you might like: