Showing posts with label Social Media. Show all posts
Showing posts with label Social Media. Show all posts


The Ultimate Fibromyalgia Pinterest Directory 2023

Welcome to the Fibro PINTEREST Directory, 2023 version  - a directory of people who PIN about fibromyalgia. Get on board and connect with the growing community on Pinterest.

Please add your Pinterest URL here and follow some of the other fibromyalgia pinners.

Fibromyalgia Pinterest Directory 2023

Fibromyalgia PINTEREST Directory 2023


Who to follow on twitter if you have fibromyalgia

Whether you have fibromyalgia, or a loved one who has, or you are looking for more information about this chronic pain condition following these accounts on twitter will help you. 

Who to follow on twitter if you have fibro

Of course all these suggestions are our wonderful fibro bloggers who are in Fibro Blogger Directory. They live with fibromyalgia and they blog about it. 

To be in this list of Who To Follow on Twitter they need to tweet regularly and tweet mostly, or more than half the time, about fibro and chronic illness related topics.

This list is in no particular order. 

Who To Follow on Twitter if you have Fibromyalgia. #WhoToFollow

Once Upon A Fog Blog, advice from a purple ๐Ÿฆ‹ @rachelbarclift "Welcome! I'm a wife, writer and artist. My posts help to spread chronic illness, Fibromyalgia and mental health awareness." #fibroblogger #author #illustrator

Beyond Fibromyalgia @BeyondFibro Nurture, Balance, Integrate ❤ Body, Heart, Mind and Spirit

Melinda @LookingLight Life Lover, #Photographer, #Lyme, #Spoonie, #ChronicPain, #Chronic Illness, #MentalHealth #Advocate, #LifeStyle Blogger, #Fibromyalgia & #BookReviews

Cynthia Covert, The Disabled Diva @TheDisabledDiva Journaling through life with multiple chronic conditions and sharing passion, tips, and journal prompts with you!

InvisiblyMe @invisiblymeblog Blogger & Freelance Writer Living With Chronic Illness & Pain. InvisiblyMe : Health, Lifestyle, Wellbeing, Leisure, Finances, News & Reviews.

Katarina @annakatarinaz Blogger, health writer, aspiring mystery novelist | wife, cat slave| history nerd, mystery reader, nature photographer|

๐•ธ๐–”๐–—๐–“๐–Ž๐–“๐–Œ ๐•ฎ๐–š๐–•๐–•๐–†๐–˜ ๐–‚๐–Ž๐–™๐– ๐•ฒ๐–‘๐–Š๐–“๐ฒ๐–˜ @GlenysRHicks Australian great-grandma. Feeling the Hope of which we speak: #Jesus #Rapture #dispensational #Maranatha #blog #ProLife #Messianic

SarahW @sswarbo A slow-paced life, but finding joy every day. Always tired, almost always in pain. Loves writing & nature. #fibrowarrior #spoonies #chronicillness

๐Ÿ‘ฃHelen's Journey๐Ÿ‘ฃ (Blogger & Poet๐Ÿ“) @helens_journey GreenLiving๐Ÿ’š Encouragement๐Ÿ’†๐Ÿผ‍♀ & Poetry BLOG. "Follow my spoonie footsteps exploring more NATURAL ways to Life/Health & Wellbeing. " FIBROMYALGIA Fighter ๐Ÿ’œ✝

Carrie Kellenberger - @globetrotteri ♿️ I write so you can better understand #axSpA #Spondylitis #Fibromyalgia #ChronicPain #MECFS #Arthritis ๐ŸŒ Former world traveler ➡️ Veteran patient advocate

Me, Myself and Chronic Illness Blog @me_illness #chronicillness #introvert - Chronic illness blogger and writer who talks about personal experience of Fibro, M.E, UCTD, Tourette's, PCOS and mental health.

BettinaBier @BettinaBier Living with #Fibro | Enjoy the little things in life | Love to be creative | Love my dog ๐Ÿพ❤ | Germany, Cologne

Cynthia Baughman @photobaugh Strategy | Leadership | Technology | #Cybersecurity | #Fibromyalgia | Finding Inspiration in Everyday Life | CA girl living in TX

Alisha Nurse @AliApow Curry-loving writer & NHS comms professional. I blog about life with fibromyalgia and depression at

Melissa vs CFS/FMS @thefibromamaOn a mission to be as well as possible with fibromyalgia & chronic fatigue syndrome. I do yoga in bed & chairs -get your free GENTLE #yogaforfibromyalgia series

Dan Neuffer @cfsunravelled ME/CFS/Fibro Recoverer, Author and speaker helping people with #MECFS,#Fibro, #POTS #ChronicFatigue #CFIDS,#MCS,#Fibromyaligia see that RECOVERY IS POSSIBLE!

BloggerBarbara @BloggerBar Chronic back pain sufferer and keen freelance blogger. I love to write about #ChronicPain #BackPain,#Fibromyalgia, #Health, #AlternativeTherapies #cakes

Sue Ingebretson @SueInge Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack

Brandi Privitera @beingfibromom Brandi is a Navy veteran and work-from-home mom passionate about helping parents living with fibromyalgia better care for themselves and their families.

Hello Fibro Blog @FibroHello
The life of a 20 something living with fibromyalgia. 
England, United Kingdom

Fibro Bloggers @FibroBloggers connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at #FibromyalgiaAwareness #FunnyFibro #FibroFriday

Not everyone in Fibro Blogger Directory is on twitter so you may like to see the full Directory of bloggers here. Also many of our bloggers are on facebook and you can find that list here.

Who to follow on twitter if you have fibro



Timezone Tweaks for social media (when to post on social media)

These Timezone Tweaks, for when to post on social media, will be very helpful and simplify your social media sharing and scheduling. These suggestions, designed for any social media platform, will ensure that even if you only post twice a day you will be reaching the most people all around the world.

Timezone Tweaks for social media or when to post on social media
TIMEZONE TWEAKS when posting on any social media (according to Vin Clancy- social media addict and growth hacker). Vin's focus in these helpful suggestions focuses on UK and USA as being the most important audiences. I have found, that as well as these two countries, I get readers from many other countries so I've added many different times in. I have not taken into consideration daylight savings as that just makes it all too difficult! I hope what I've done helps you. 
We should be posting at:
  • 8am UK time/12am Pacific Daylight Time.
    WHY post at 8 am? UK is looking at their phones on the way to work or on their computers before work at home. 
    Los Angeles is up late browsing.
    Most UK content is posted in the daytime, so you get ahead of the crowd, and if your post does well, it’ll be the first thing the west coast Americans see when they wake up.

    8am is 3am Toronto, Canada time
9pm in Wellington, New Zealand
4pm in Taipei, Taiwan
5pm Sydney, Australia time 12.30pm India
9am Germany, Sweden, Italy etc (Central European Time)
12 am Pacific Time
3am Eastern Time
2am Ukraine

  •  4pm UK time/8am pacific.

WHY post at 4pm? 4pm UK time was largely found to be the time UK people spend on social media, so a good time slot in the UK, and you catch the west coast of the USA on their way to work
That's 11am Toronto, Canada
10 am in Houston, Texas
3am in Sydney, Australia.
12 am Taipei 
6pm Ukraine 
5pm Germany (Central European Time)
8.30pm India
  • 8pm UK time/12pm pacific.
    WHY post at 8 pm? Possibly the most important time slot of the day to post on social media as it is a hyper active time slots in both territories. (UK and USA) There is a lot of competition for this time slot with other posts, and UK people aren’t online as much, but if you nail all three timeslots you’re winning.
    That's 7am Sydney, Australia
    3pm in Toronto, Canada
    4am Taipei, Taiwan
    9am Auckland, New Zealand
    3pm Washington, USA
9pm Germany, Sweden, etc.  (Central European Time)
10pm Ukraine
Timezone Tweaks for social media

 Let's get personal

So for me in Sydney Australia I should be posting at 5pm, 3am and 7am my time.

What about you?

If you are in Central European Time that's Algeria, Austria, Belgium, Bosnia-Herzegovina, Croatia, CzechRepublic, Denmark, France, Germany, Hungary, Italy, Netherlands, Norway, Poland, Serbia, Spain, Sweden, Switzerland 9am, 5pm and 9pm are your best posting times if you are trying to be seen by UK and US readers.

If you are in Toronto and Ontario Canada and New York it's 3am, 11am and 3pm.

If you are in Central Time that's Alabama, Iowa, Louisiana, Minnesota, it's 2am, 6am and 2pm.

If you are in China, Macao, Taipei, Taiwan it's 4pm, 12am and 4am.

If you are iEastern European Time that's Finland, Jordan, Greece, Latvia, Russia, Romania, Ukraine it's 2am, 6pm and 10pm. 

If you are in Nevada, California, Oregon, Washington, Idaho, British Columbia, Yukon and Baja California it's 12 am, 8am and 12pm.

Timezone Tweaks for social media (when to post on social media)

If you are looking for more help with your blog you might like:


Pinterest Tips and Tricks: manual pinning and fresh content

Recently I have begun experimenting with PINTEREST to see if I can increase visitors to this site from there. Here you can follow along, see what I am trying and do it too. After all who doesn't want more traffic to their blog?

manual pinning and fresh content on pinterest

If you are new to Pinterest you may prefer to see my video on the basics here.

Last week I started using the pinterest pin builder, as they call it, but most people name it the manual pinner. It is a pinning tool that is on the Pinterest platform which is free to use. You access it from your Pinterest page. It is found at the top left by clicking the arrow next to 'Create' and then "Create Pin.' It does allow you to schedule the pin you create. 

When commencing to use their pinner I discovered something that I believe may be important. I added an image that I had created and was given the following message by pinterest:
We recommend an image that is at least 1000 px x 1500 px. This image is 735 px x 1102 px.

So according to pinterest, and straight from the horses mouth, as the saying goes, my pins have been too small. It makes great sense to me to create pins that are the size recommended by the actual platform so this is what I have just started doing. I will report back on my experiment with larger pins soon.

I have been using Canva to create my pins and just love it. Here is a tip to create these larger sized pins there... 

  1. Log into your canva account
  2. Open Create a Design which is in the top right hand corner
  3. Add your dimensions (1000 px in Width and 1500 px in Height)
  4. Click Create new design and canva will create the template for you to start using. It's so simple!

I have also started using pinterest's manual pinning and will report back if this helps increase click through's to this site as suggested by many pinterest experts. 

I have also gained some useful insights from watching a video with Pinterest Partnership Manager, Lucy Matthews, who is one of their representatives. You can watch the video on facebook but here are my major takeways if you don't have time:

  • Pinners want fresh content that is recent and relevant.
  • As long as the image is fresh the pin is counted as fresh content.
  • Focus on unique, new images to be fresh.
  • This fresh content will be shown and reach larger audiences.
  • Duplicate content will be shown less and possibly considered as spam. She would not share details on actual numbers on how much duplicate content would be considered spam. 
  • Pinterest is partnered with Tailwind who make sure that pinners use up to date practices.
  • If you are saving the same article to many boards try to use a few different "fresh pins".
  • Stay up to date with pinterest through their Best Practices updates or through Tailwind.
  • A creator is someone who publishes content and a pinner is someone who pins on pinterest.
  • Best practices will continue to evolve over time. 

RESOURCES mentioned here:

Pinterest manual pinner

Tailwind live video 2020.



Pinterest Tips and Tricks: manual pinning and fresh content. Follow along with me as I experiment with pinterest to get more blog traffic


The Fibromyalgia Facebook Directory

Facebook is a great place to catch up with others who have fibromyalgia. Here we have a great guide of so many people who are on facebook and who have fibromyalgia. Connect with them there, join in the conversations and find out more about their experiences of fibromyalgia. 

If you have a facebook page that is all about fibromyalgia we would love you to link it up here. You can get connected with a large facebook community who are all sharing what matters to them about living and coping with fibromyalgia. 

Fibromyalgia Facebook Directory


Fibro Facebook Directory

Pinterest Tips and Tricks: Pinning More Often

If you are a blogger, trying to get more readers to your blog, then join in here each week to get some ideas and find out what I am experimenting with. This week I am investigating simple to apply pinterest ideas to increase traffic.

Tips for pinterest


I read the following on buffer and I'm going to give it a try ie PIN MORE OFTEN.
Pin more often, and space out your pins
Perhaps the best change we’ve made to our Pinterest engagement of late is to pin more often.
We’ve gone from pinning once or twice a day to pinning 10 times per day.
As a result, we’ve seen 150 percent more engagement on Pinterest.
So I am currently buffering 5 pins a day and usually 1 of them is a brand new fresh pin. I also reshare pins of other fibro bloggers... about 3 to 5 a day. Now, trying this new strategy I will be pinning 10 pins a day. As I write this I wonder how long I will be able to maintain this. Of course scheduling with buffer is what allows me to do this and I love it and honestly find it quite addictive. It speaks to that part of me that likes to feel organised and feel like I'm achieving something. But what I am thinking is that initially I will increase my pins to 7 a day which may be a bit more manageable for me. Then if I am coping I will increase to 10 per day.

Space these pins out across the day, and make sure you pin in the afternoon and evening, as those are the best times for pin engagement. ~ Social Media Examiner

I will also be taking on board the above advice about when to pin and checking out the times for the part of the world where my main audience is coming from.

I also use Canva for creating images which is what will enable me to create more fresh pins easily. I love doing this and find it quite relaxing.

I will be checking my stats and letting you know how I go with getting more traffic. After all that is the whole point of the exercise - to get more traffic back to this site and to see if increasing pins allows me to get more traffic through Pinterest.


I would love to know how often you currently pin on pinterest? Do you pin regularly?


Also if this experiment is something you might give a try please let me know. Maybe you might decide to pin on a more regular basis or increase the number of pins you currently share. Let me know in the comments so we can check back in with our results.