I blog about my experiences and give tips and tricks to help and inspire other disabled people. I also hope to raise awareness and compassion from able-bodied people wanting to educate themselves.
I hope my posts and videos help you, but I am not a doctor and though I trained as a nurse I cannot give personalised help and advice.
what it is like to live as a neurodivergent adult female with chronic health conditions whilst trying, very hard, to impart some of the breakthroughs and many positives of increased self-understanding that have come out of the journey.
I aim to offer is a resource comprised of relatable experiences and clues in the dark for other people exploring their health status as I have had to do…and, in fact, as all of us with chronic conditions such as ME/CFS are forced to do for ourselves given these conditions are still so widely misunderstood, stigmatized, under-researched and generally swept under the carpet.
Her fibro related blog posts include:
- Weighted blankets revisited.
- Cervical instability at the core of Fibromyalgia
- “You’re looking really well”: The curse of the invisible disability
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Susan's blog is Living Creatively with Fibro where she has been blogging to help others understand more about Fibromyalgia and share the creativity that helps her in her life.
In 2016, I started the blog “Living Creatively with Fibro.” The first reason was to chronicle my journey. Then as time passed by I realised that there was so much that was unknown or misunderstood about Fibromyalgia. Even within the medical community. So I wanted to help the “Spoonie” community get the word out.
Although I write quite a lot about Fibromyalgia and Spoonie Life. That does not define me, and so I write about how I live with Fibro too.
Her fibro blog posts include:
- Adaptable Working When you have Fibromyalgia
- Fibromyalgia and Itching
- Complex Sleep Problems and Fibromyalgia
I started this blog to come to terms with my diagnosis but also to raise awareness and help others with similar conditions know they are not alone. I have found an amazing community of bloggers and the chronically ill that support one another through everything 💜
- Tips on Pacing when you Live with Chronic Illness
- Fibromyalgia: Old Before My Time ( a poem)
- What It’s Like To Be A Young Adult With Fibromyalgia
despite the fact that there is no panacea cure for these disorders, full recovery is absolutely possible.
His fibromyalgia related posts include:
- How Flares and Relapses Fuel Your Healing Journey with Raelan Agle (video)
- What is Recovery from Fibromyalgia, ME/CFS, POTS or related syndromes? (video)
- Choosing the Right Fibromyalgia Treatments