Why is Fibromyalgia Awareness important?

WHY IS FIBROMYALGIA AWARENESS IMPORTANT?
Building awareness of fibromyalgia is important for so many reasons:

• there is currently no cure for fibromyalgia
• there are no medications that are specific to treating fibromyalgia
• fibro is usually a life long condition that can affect many parts of the body
• many people are misdiagnosed with fibromyalgia
• there are many misconceptions about fibromyalgia
• to encourage research into fibromyalgia
• to help decision makers address the issues of those living with fibromyalgia

WHEN?

Every day on social media we share information to help raise fibromyalgia awareness. 

In May we run a special Fibromyalgia Awareness program called #ThisIsFibro where we share extra information and encourage others to share.

WHO?

Who runs this campaign?

#ThisIsFibro is run by Fibro Blogger Directory and all the bloggers who are members. 

Anyone can join in by sharing the info on our facebook, twitter and PINTEREST sites.

WHERE?
Please join in by sharing your personal story about fibromyalgia or any information about fibromyalgia. If you are looking for things to share take a look on twitter using the hashtag #ThisIsFibro or go to our facebook page where you will find hundreds of things to share from many people living with this chronic pain condition.

Here is just a sample of some of the things we share...

Fibro Friday

Here at Fibro Friday you can share a fibromyalgia post and find out what others are saying about fibromyalgia. Thanks for dropping in this week and hope you find it helpful.

Fibromyalgia articles - weekly link up

All this month, and every month we are helping others understand more about Fibromyalgia. Please join in by sharing one of your fibro articles here, and reading some of the others articles. You'll find out how others are coping with fibro, what they are going through, things they are trying to help them live with this ongoing, chronic pain condition.

Fibromyalgia Quotes

We are raising awareness of fibromyalgia in May and some of the fibro bloggers, in our facebook group, are sharing their quotes about fibromyalgia so that others can understand more about what is it like living with it.

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  Bethan Catherine Jones 'Just because I'm smiling doesn't mean I'm pain free. I live in pain 24/7 but I refuse to let it stop me'
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  Bettina Bier 'Just because I don't look sick doesn't mean i'm not. I still have all my fifty shades of fibro.
  If you would risk to take a closer look you would see it.'
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  Julie Ryan That I hate missing out on things. So, when I cancel, know that I really didn't want to. I really want to be there with my friends and family.

  
  
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  Sue Ingebretson A fibromyalgia diagnosis isn't the finish line, it's the starting gate. Once you know you have it, the journey begins to figure out what's the best way to approach healing for YOU.

  
  
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  Rachel Barclift Living with Fibromyalgia is challenging, however I would rather spend my life in positivity and light than negativity and darkness.

  
  
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  Lynne Said Fibromyalgia doesn't sit comfortably on the conventional medical path, so when my doctor didn't have the answers my mistake was believing there was nothing else I could do, I was stuck, until I realised that there were many other paths back to health and I took them and so can you.
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  Carol Homer "Focus on what you can do, not what you can't. Forget about the unwritten social rules that dictate how your life should look. Adjust your perspective, be your own advocate and write your own story. You owe it to yourself to keep going for those brighter days."

  
  

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  Jennifer Passmore "Life, even without a chronic illness, is simply a constant learning process, and with chronic pain, we are always learning what we can do to improve our quality of life. We’re not going to let the pain defeat us, because we’re going to come out the other side of this, fighting. Not one person’s battle is the same as another, and we’re all fighting something different. Because, that is truly what we are, fighters, each and every one of us."

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  Terri Sutula "I realized early on in this process that I have a choice; I can be bitter about my circumstances, or I can let it make me a better person. I choose better."
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  Mandy Farmer "Don't leave me out of your plans. I may have to say 'no' but please don't give up on me."
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  Alisha Nurse When I say I’m okay, it doesn’t mean I’m not in pain. It just means I’m managing. I’m rarely pain free.

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• Active Now

  Nikki Albert Pace when you're having a good day and a bad day. Remember coping is a process, not an end game. And remember we can have a life it is just a different looking one; perhaps more mellow and a slower pace but a life nevertheless.