What fibro bloggers have to say about fibromyalgia

Fibromyalgia is a chronic pain disorder that can have a significant impact on a person’s lifestyle and mental health. It is a complex and often misunderstood condition. While medical definitions provide a clinical overview, the true essence of living with fibromyalgia is best captured through the voices of those who experience it first hand.

Here we delve into the personal narratives of fibro bloggers—individuals who courageously share their journeys, struggles, and triumphs on their blogs. 

From the relentless fatigue described by Ria at Stronger than Pain, who likens it to a "lead blanket" that never lifts, to the emotional toll highlighted by Bindu at Beyond Fibromyalgia, who speaks of the frustration in hearing doctors dismiss her pain as "all in your head," these accounts resonate deeply. Bethan at Hello Fibro Blog discusses the link between trauma and fibromyalgia, emphasizing the condition's complexity beyond physical symptoms.

These narratives not only validate the experiences of those living with fibromyalgia but also foster a sense of community and understanding. By sharing their stories, fibro bloggers provide support, raise awareness, and advocate for better recognition and treatment of this invisible illness.

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Fibromyalgia Awareness in May 2025

I'm glad you stopped by to see what we are doing this May to raise awareness of fibromyalgia. As you know May is internationally recognized as the month for Fibromyalgia Awareness with May 12th dedicated as Fibromyalgia Awareness Day.

This May we are:

1. Resharing social media posts on X. 

Many people are raising Fibromyalgia Awareness there and on their other social media including:

💜Carrie Kellenberger on Facebook, X , Instagram, Pinterest.

💜Sue Ingebretson on Facebook, X , Instagram, Pinterest.

💜Dale Rockell on X, Facebook. 

2. Sharing many new posts on X

3. Sharing posts on Tumblr that you can reshare. 

4. Creating a catalogue of new and past images here that you can reshare on your own social media. Just copy and paste the Fibro Awareness images below. 

You can also find many more images from fibro bloggers to share here

May's Fibromyalgia link up

WELCOME to Fibromyalgia Awareness Month and the link up for May. Participate anytime to share your link and help spread awareness about fibromyalgia.

Do not forget your post will be promoted in many ways, after you add it here: 

•  as part of a group post on Fibro Blogger Directory where readers will be taken directly to your site rather than via inlinkz
• as an individual post on X in a few weeks to over 17 thousand followers. 
• as an individual post on tumblr in a few weeks. 
• possibly on Pinterest at Fibro Bloggers Directory where we have over 45.4k monthly views.

WHAT'S HAPPENING on the fibromyalgia blogs lately?

Check out the latest updates from our fibro bloggers! Find out what the fibro blogger community is up to. 

Here is a round up of the latest happenings from many of the fibro bloggers who are members of the Directory. You can find the complete list of fibro blogs here. 

Mandy has been brave enough to post Widow's Reality: My Love Story ~ God's Love.

Melissa has written a book of fiction 'Mindfully Yours, Ella' and the main character is living with chronic illness.

                                                     

Dales' YouTube Chanel, Fibro & Photos, is fairly new. He has 8 videos. Please subscribe. 

                                                     

Caz  has written about policy changes in the UK that affect those with chronic illness and disability. 

                                                     

Glenys give us an update on her chronic life living in Australia and thinking about the wider world.

                                                     

Suzanne has updated her site, CocoLime Fitness and it looks great. 

                                                     

Sarah W has written Exercise-Induced Migraines: How Pushing Through Flu Derailed My 10K Training Plan

                                                     

Janet Jay has written Chronic pain patients reveal hidden truths to a future doctor. 

                                                     

Michelle is resuming her Turning Pain into Strength podcast with a variety of interesting guests. 

                                                     

Melinda has an interesting article about What Science Says About the Link Between Fibromyalgia and Migraine Episodes

                                                     

Helen writes about her experiences with weighted blankets here

                                                     

Carrie Celebrates turning 50! in 50 for 50! Half A Century Birthday Edition

                                                     

Ria writes about her new symptom of Tinnitus in Will I never be able to enjoy silence again?

                                                     

One of Beverley's latest posts is Becoming More Active With Chronic Illness. 

                                                     

Cynthia, The Disabled Diva, is active on X.

                                                     

Susan Pearson has written about Complex Sleep Problems and Fibro.

                                                     

Lee Good (that's me) has a post about Muscle Relaxant Medications for Fibromyalgia.

                                                     

I hope I have missed any Fibro Bloggers who have something recent they would like to promote. If I have please let me know in the comments below.

Five fabulous fibro bloggers

We are celebrating five outstanding fibro bloggers from the Fibro Blogger Directory this week! 

These courageous writers endure chronic pain yet continue to share their journeys to empower others and help them understand more about Fibromyalgia. 

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Beverley has been blogging at Blooming Mindfulness since 2016. She has many chronic illnesses including Fibromyalgia, anaemia, chronic fatigue, depression and general anxiety disorder. Despite all of these, and being a carer, she has a very positive outlook. You can catch up with her through the many lovely videos she has created chatting about her life as a disabled vintage witch!

I blog about my experiences and give tips and tricks to help and inspire other disabled people. I also hope to raise awareness and compassion from able-bodied people wanting to educate themselves.

I hope my posts and videos help you, but I am not a doctor and though I trained as a nurse I cannot give personalised help and advice. 

Here are some of her fibromyalgia related posts:

• How to self soothe when life seems totally overwhelming.
• Let's talk about Mobility Aids.
• Frustration with Fatigue.

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Helen blogs at Living whole: Neurodivergent lived experience with a side order of chronic health. As well as Fibromyalgia, POTS, Autism and ADHD and Ehlers-Danlos hypermobility she writes about being a highly sensitive person and...

what it is like to live as a neurodivergent adult female with chronic health conditions whilst trying, very hard, to impart some of the breakthroughs and many positives of increased self-understanding that have come out of the journey.

I aim to offer is a resource comprised of relatable experiences and clues in the dark for other people exploring their health status as I have had to do…and, in fact, as all of us with chronic conditions such as ME/CFS are forced to do for ourselves given these conditions are still so widely misunderstood, stigmatized, under-researched and generally swept under the carpet.

Her fibro related blog posts include:

• Weighted blankets revisited. 
• Cervical instability at the core of Fibromyalgia 
• “You’re looking really well”: The curse of the invisible disability

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Susan's blog is Living Creatively with Fibro where she has been blogging to help others understand more about Fibromyalgia and share the creativity that helps her in her life.

In 2016, I started the blog “Living Creatively with Fibro.” The first reason was to chronicle my journey. Then as time passed by I realised that there was so much that was unknown or misunderstood about Fibromyalgia. Even within the medical community. So I wanted to help the “Spoonie” community get the word out.

Although I write quite a lot about Fibromyalgia and Spoonie Life. That does not define me, and so I write about how I live with Fibro too.

Her fibro blog posts include:

• Adaptable Working When you have Fibromyalgia
• Fibromyalgia and Itching
• Complex Sleep Problems and Fibromyalgia

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Bethan blogs at Hello Fibro Blog. She has been suffering with chronic pain since she was ten but was not diagnosed with Fibromyalgia till many years later. She was in her early 20's when she started blogging. 

I started this blog to come to terms with my diagnosis but also to raise awareness and help others with similar conditions know they are not alone. I have found an amazing community of bloggers and the chronically ill that support one another through everything 💜

Some of her interesting Fibro posts include:

• Tips on Pacing when you Live with Chronic Illness
• Fibromyalgia: Old Before My Time ( a poem)
• What It’s Like To Be A Young Adult With Fibromyalgia

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Dan blogs at CFS Unravelled - Opening the Door to Recovery from ME/CFS & Fibromyalgia. He is a former Physicist who used his scientific training to research Fibromyalgia, ME/CFS, and POTS when he was ill with for 7 years. His main goal is to educate and assist patients and their healthcare providers in understanding these conditions. His blog is full of video interviews including experts in the field. He believes that...

despite the fact that there is no panacea cure for these disorders, full recovery is absolutely possible. 

His fibromyalgia related posts include:

•  How Flares and Relapses Fuel Your Healing Journey with Raelan Agle (video)
• What is Recovery from Fibromyalgia, ME/CFS, POTS or related syndromes? (video)
• Choosing the Right Fibromyalgia Treatments

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I hope you have enjoyed finding out more about these fibro bloggers this week. Don't forget to call in next week to see who will be included in Focus on Five Fibro blogs.

Learn more about Fibromyalgia from those living with it.

Here you will discover 14 insightful articles about fibromyalgia and its impact on daily life. Dive into helpful info on managing this chronic pain condition including practical tips, real-life examples, and statistics.

Thanks for stopping by.

	One Step Forward, Three Years Back Dale reflects on the fragile and unpredictable nature of life with Fibro, where even minor stressors or illness can cause major regressions. The post highlights the unpredictable and frustrating nature of living with Fibro and the difficulty others have in understanding its impact.
	Worldwide statistics on Fibromyalgia The article provides a comprehensive overview of fibromyalgia on a global scale, presenting key statistics and insights into the condition's prevalence, impact, and management.
	Quietly Dwelling This is a reflection, by Glenys, on living with grace, patience, and peace—even when the journey is marked by pain.
	Arthritis Leg Pain VS Fibromyalgia Leg Pain: What's The Difference? Carrie gives a detailed and personal comparison of the symptoms, sensations, and experiences associated with autoimmune arthritis leg pain and fibromyalgia leg pain. She writes from the perspective of someone living with both conditions and aims to help others understand how to differentiate between the two types of pain, which can often feel very similar.
	I don't think I would cope  A personal reflection on managing life with fibromyalgia, particularly after a recent flare-up has subsided. The author shares how she finds comfort and routine in simple daily activities which help maintain emotional balance and reduce exposure to distressing world news.
	Ignore Your Aspirational Self:  How to quit spending money on clothes you don’t need and probably don’t want. This is an honest exploration of identity, aging, and self-acceptance. Johanna confronts the idea of the aspirational self—an idealized version of who she once was or wishes she could still be—and the emotional and material clutter that accompanies that identity.
	Being A Pain Research Participant For Wearable Tech This recounts the author's experience participating in a wearable tech research study aimed at understanding and improving life for people living with chronic pain.
	What Helps Contradicts How You Feel This explores the tension between what helps and how fibromyalgia makes you feel. Dale emphasizes that while self-management techniques like yoga, meditation, and photography walks have been beneficial, they often go against the natural urge to do nothing that fibro brings.
	When My GP Said ‘There’s Nothing More We Can Do’ Pete shares his personal journey with fibromyalgia, beginning with the moment he was told by his GP that there was nothing more that could be done for him. Initially, the diagnosis was a relief, but soon the reality of limited treatment options set in, leaving him feeling lost and hopeless. Find out what happens next.
	How to let go when you’ve been diagnosed with a chronic illness Being diagnosed with a chronic illness often means letting go of things we once enjoyed, from work to hobbies. This transition can be tough on our sense of self and may bring up feelings of anger, sadness, or frustration. In this post, Sarah shares some tips on how to navigate this process.
	I think it was well worth it!  Glenys describes the efforts she went to so she can now enjoy one of her favourite pastimes and why the extra pain was worth it.
	Will A Virus Impact My Long-Term Function?   A personal reflection on coming to terms with the impact that extra conditions may have on someone living with Fibromyalgia.
	Fibromyalgia is hard. But getting people to believe you? That’s a different kind of fight. The process of explaining fibromyalgia to an employer can be nerve-wracking. This Fibro Chick shares her experience of advocating for her self at work and gives specific and helpful suggestions you can use.
	Validation: False Guilt's Cousin The author reflects on the emotional toll fibromyalgia can take when feelings of False Guilt arise. Many people doubt the legitimacy of fibromyalgia, which can lead sufferers to seek validation for their pain. Find out what helps bring a sense of validation.  From April 2025's Fibromyalgia link up - week 539.

With many thanks to This Fibro Chick, Dale Rockell, Glenys Robyn Hicks, Johanna Sr, Carrie Kellenberger, Pete, Sarah Warburton and Lee Good.

Find out more about these fabulous sharing and caring bloggers at their Fibro blogs by clicking on their names above. 

The Ultimate Instagram Directory for Fibromyalgia

Welcome to the Ultimate Instagram Directory for Fibromyalgia!
Looking for a comprehensive list of Instagram accounts focused on Fibromyalgia? You’ve come to the right place!

We’ve gathered a wide range of amazing Fibro-focused profiles, all in one convenient spot. Whether you're here to connect, learn, or spread awareness, we hope this directory makes it easier to find and support the Fibromyalgia community.

Don’t forget—following, liking, and commenting on these accounts helps raise awareness and keep the conversation going on Instagram!

If you have not been included and would like to be just let me know your instagram name and url in the comments. 😉

1.	fibrobloggers
2.	My Several Worlds
3.	Carrie Kellenberger - Fibro Blogger
4.	Helen's Journey - Fibro Warrior / Blogger / Poet
5.	Fibro & Photos with Dale Rockell
6.	Morning Cuppas with Glenys
7.	Pain: Chronic / Words: Iconic (JanetJay.com)
8.	the_disabled_diva
9.	windys journey
10.	sue.ingebretson
11.	danneuffer.cfsunravelled
12.	Hello Fibro Blog
13.	Living Creatively With Fibro
14.	CocoLime Fitness
15.	Melissa N Reynolds
16.	Turning pain into strength
17.	Alisha Nurse

18.  Fibromyalgia National Health Organization

19.  Beverley Butterfly xx

20.  Fibro Farm House 

21.  Orkney Fibromyalgia Sufferer

22.  Fibromyalgia Girl - Charlotte Neal

23.  Fibromyalgia Society

24.  Fibromyalgia Memetherapy

14 Fibromyalgia articles for you to read

 WELCOME! 

Here you can discover 14 fascinating articles on Fibromyalgia that provide valuable insights and support. You will find honesty about living with this condition, encouragement to keep going, and understanding when you feel like you cannot. 

We are helping to raise Fibromyalgia awareness and hope you will too by sharing this post so that more people can find helpful information about living with Fibromyalgia.

While you are here you may want to check out last months Fibro articles at the fibro blogs of many great writers. 

1. Dear Stranger…

2. Complex Sleep Problems and Fibro

3. A short story about diagnosis

4. A Creativity Life Lesson For What Others Think Of Fibro

5. Life lessons & perspective from the season of SPRING! (Keep growing spoonies, life isn't over!)

6. Don't let them dictate

7. Some more to add to the mix

8. What is hypermobility spectrum disorder?

9. Changing SSA to Harm the Disabled

10. NYTimes Acknowledges Chronic Pain Epidemic

11. For World Poetry Day, 6 poems about (& despite!) the fibro experience

12. What Is Normal Anyway?

13. Pacing Through the Pain: My First parkrun

14. Cromer New Year's Day Fireworks & Fibro Pain

From Fibro Friday in March week 538

With many thanks to This Fibro Chick,

 Susan Pearson, 

Melissa Reynolds, Dale Rockell, Helen's Journey, Glenys Robyn Hicks, Johanna Sr, Janet Jay, and Sarah Warburton.

Find out more about these fabulous sharing and caring bloggers at their Fibro blogs by clicking on their names above. 

Sixteen Sensational Fibromyalgia Articles for you to read

 WELCOME!

Here you will find many interesting Fibromyalgia articles written by those living with Fibromyalgia.

1. Best Fibromyalgia articles of 2024

2. Shades Of Autumn

3. Last months Fibro link up

4. Why (and how) to track symptoms

5. How To: Dating With Chronic Pain or Invisible Disabilities

6. Managing Fibromyalgia Through Journaling

7. Over A Week Of Grey Skies Takes It's Toll But Benefits Creativity

8. Fibro & ME Living in a void

9. Meditation combined with nature scenes helps fibromyalgia

10. Flare & Flourish

11. Another Awful A&E Experience With A 20 Hour Wait For A Bed

12. Pushing My Fibro Limit For Creativity And Paying For It

13. Why Is Evening Activity So Painful?

14. Chronic Pain Pillows: Your Ultimate Guide to Every Type

15. The Silent Battle: Living with Fibromyalgia and the Fear of Asking for FMLA

16. Maybe I should have rephrased it

From Fibro Friday in February week 537

With many thanks to Dale Rockell, Melissa Reynolds, Janet Jay, Sarah Warburton, Flare & Flourish, Invisibly Me, This Fibro Chick, and Glenys Robyn Hicks. 

Find out more about these fabulous sharing and caring bloggers at their Fibro blogs by clicking on their names above. 

Videos from fibro bloggers

Do you have a video channel where you share information about fibromyalgia we would love you to link it up here. 

Nine interesting Fibromyalgia articles at Fibro Friday week 536

WELCOME to the Fibromyalgia link up in 2025.

You can learn so much about Fibromyalgia here... suggestions for diet improvements, activities that may help distract you from pain, tips for protecting your mental health, communication issues and tips for blogging when you have any chronic illness. 

These articles have all been written by men and women living with fibromyalgia and also other chronic illnesses. If you explore their blogs you will find a wealth of information. 

	The Carb Conundrum: How one man is finding some reduction in his Fibromyalgia symptoms through dietary changes.
	The Surprising Benefits of Reading for Fibromyalgia: Why You Should Snuggle Up with a Good Book is Sarah's suggestion for escaping stress and includes choosing the right book.
	My plans and hopes for 2025. Beverley shares her goals for the year ahead which she sets as a strategy to help control her anxiety and achieve in small steps.
	Please Don't Do Me Any Favors Communication means clarity, both ways. Sometimes that's slow and clunky and sometimes doesn't exist at all. Johanna shares her experience of trying to communicate her needs.
	You're Doing All You Can, Now Chase Your Acorn. Dales neurologist shares his unusual prescription on coping with the challenges of fibromyalgia.
	A Distraction Of Safari Park Photography has some great photos of animals that look stunning in black and white.
	Protecting your Mental Health in Winter. This article explains the Why and How of mental health and Beverley Butterfly shares her tips for getting through the darker, colder months.
	When Fibro Forces You To Adapt To Stay Creative. Dale explains changes he has made to photographic equipment so he can manage to keep doing his photography when living in pain.
	Tips for Blogging with Chronic Illnesses. If you are considering blogging, these tips may help you.

Thanks for joining in at Fibro Friday week 536

Dale from Fibro and Photos

Sarah from Musings on Life with Fibromyalgia

Beverley at Blooming Mindfulness

Johanna at Adventures of Motherhood